ArticlePediatric pulmonology2020
Home nursing for children with home mechanical ventilation in the United States: Key informant perspectives.
Article in Pediatric pulmonology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 38 citations in OpenAlex.
- Interdisciplinary clinical bronchopulmonary dysplasia programs: development, evolution, and maturation.Journal of perinatology : official journal of the California Perinatal Association · 2026Review
- The Impact of COronaVIrus Disease of 2019 Pandemic on Home Health Nursing Availability in Pediatric Patients After Tracheostomy Placement.Pediatric pulmonology · 2025Article
- Navigating a New Normal: A Mixed-Methods Study of the Pediatric Tracheostomy Parent-Caregiver Experience.Children (Basel, Switzerland) · 2025Review
- Discharge Practice Variability in Pediatric Chronic Home Invasive Ventilation.Pediatric pulmonology · 2025Article
- Transitioning medically complex infants home: lessons learned from quality improvement efforts.Journal of perinatology : official journal of the California Perinatal Association · 2025Article
- Review
- Magic Mothers: How Parents of Children with Invasive Mechanical Ventilation Can Make Health System Crises Disappear.Journal of developmental and physical disabilities · 2025Article
- Candidacy Decisions for Long-term Ventilation.Pediatrics · 2024Article
- Recovery environments in places of daily living: a scoping review and conceptual analysis.BMC public health · 2024Article
- Equitable Care for Children With a Tracheostomy: Addressing Challenges and Seeking Systemic Solutions.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Respiratory Outcomes for Ventilator-Dependent Children With Bronchopulmonary Dysplasia.Pediatrics · 2023Article
- Tracheostomy in infants with severe bronchopulmonary dysplasia: A review.Frontiers in pediatrics · 2022Review
- Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics.Frontiers in pediatrics · 2021Article
- Long-term mechanical ventilation and transitions in care: A narrative review.Chronic respiratory diseaseReview
- Home health nurses for children with invasive mechanical ventilation (IMV): Perspectives on gaps and opportunities for recruitment.Journal of pediatric nursingArticle
Corrections and comments
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Authors and funding
7 authors at 4 institutions in 2 countries.
Funding
Abstract
OBJECTIVES & HYPOTHESIS: Children with home mechanical ventilation (HMV) require skilled care by trained caregivers, and their families feel the impacts of ubiquitous home nursing shortages. It is unknown which factors determine allocation; no standards for private duty nursing intensity exist. We sought to characterize provider experiences with and opinions on home nursing for children with HMV, hypothesizing providers would describe frequent home nursing gaps across clinical scenarios.
methodsPurposeful and snowball sampling identified key informant clinical providers. Survey topics included hours of home nursing received across clinical and family scenarios. Close-ended responses were analyzed using descriptive statistics and open-ended questions coded with iterative modification for major theme agreement.
resultsA total of 59 respondents represented care of patients from 44 states; 49.2% physicians, 37.3% nurses, 10.2% respiratory therapists, and 3.4% case managers. Nearly all (97%) believed that families should receive more hours during initial home transition, yet less than half (47%) do. The majority (80.7%) thought the presence of other children in the home should influence nursing hours, yet only three (5.3%) reported other children have influence. Across hypothetical medical technology scenarios, providers consistently described children receiving fewer nursing hours than the providers' ideal practice. A third (31.7%) described discharging patients without any home nursing arranged.
conclusionsThis HMV provider sample highlights pervasive deficiency in home nursing provision with heterogenous interpretation of what constitutes ideal home care. Family and social contextual factors are infrequently considered in nursing allocations. Provider, community health, and family stakeholders must collaborate to generate national community practice standards for children with HMV.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.