Evidence map›Paper›PMID 32948953›Full record

ArticleJournal of general internal medicine2021

Low Skepticism and Positive Attitudes About Advance Care Planning Among African Americans: a National, Mixed Methods Cohort Study.

Lauren Jodi Van Scoy, Michael J Green, Pamela D Witt, Cindy Bramble, Christopher Richardson, Irene Putzig, Olubukola Toyobo, Emily Wasserman, Vernon M Chinchilli, Amy Tucci and 1 more

Registry-linked trialOpen access · bronzeAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of general internal medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03456921 (Using an End-of-life Conversation Game to Engage Underserved Communities in Advance Care Planning), which is not on this map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
1.3field-weighted citation impact, top 18% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03456921 nacompletednot on this map

Using an End-of-life Conversation Game to Engage Underserved Communities in Advance Care Planning

TypeinterventionalSponsorMilton S. Hershey Medical CenterRan2018 to 2019Enrolled1,122ConditionsAdvance Care Planning, Vulnerable Populations, Advance Directives, Terminal IllnessArmsEnd-of-life conversation game called "Hello"
3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 7 citations in OpenAlex.

  1. Trial
  2. Review
  3. Article
  4. "Don't Talk to Them About Goals of Care": Understanding Disparities in Advance Care Planning.The journals of gerontology. Series A, Biological sciences and medical sciences · 2022
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 1 institution in 1 country.

Lauren Jodi Van ScoyDepartment of Medicine, Penn State College of Medicine, Hershey, PA, USA. lvanscoy@pennstatehealth.psu.edu.ORCID 0000-0003-0984-1474
Michael J GreenDepartment of Medicine, Penn State College of Medicine, Hershey, PA, USA.
Pamela D WittDepartment of Medicine, Penn State College of Medicine, Hershey, PA, USA.
Cindy BrambleHospice Foundation of America, Washington, DC, USA.
Christopher RichardsonHospice Foundation of America, Washington, DC, USA.
Irene PutzigHospice Foundation of America, Washington, DC, USA.
Olubukola ToyoboPenn State College of Medicine, Penn State Milton S. Hershey Medical Center, Hershey, PA, USA.
Emily WassermanDepartment of Public Health Sciences, Penn State Milton S. Hershey Medical Center, Penn State College of Medicine, Hershey, PA, USA.
Vernon M ChinchilliDepartment of Public Health Sciences, Penn State Milton S. Hershey Medical Center, Penn State College of Medicine, Hershey, PA, USA.
Amy TucciHospice Foundation of America, Washington, DC, USA.
Benjamin H LeviDepartment of Humanities, Penn State Milton S. Hershey Medical Center, Penn State College of Medicine, Hershey, PA, USA.
Penn State Milton S. Hershey Medical Center · US

Funding

Penn State Clinical and Translational Science InstituteUL1TR002014 · NCATS · PENNSYLVANIA STATE UNIV HERSHEY MED CTR · PI KRASCHNEWSKI, JENNIFER L. · 2016 to 2025
$33.7M
Penn State Clinical and Translational Science InstituteUL1TR000127 · NCATS · PENNSYLVANIA STATE UNIV HERSHEY MED CTR · PI SINOWAY, LAWRENCE I · 2012 to 2015
$17.1M
CIHRNCATS NIH HHS UL1 TR000127NCATS NIH HHS UL1 TR002014
6 · The paper itself

Abstract

backgroundAfrican Americans have low engagement in advance care planning (ACP). This has been attributed to healthcare distrust and skepticism about ACP. A better understanding of these attitudes is needed to address health disparities related to end-of-life care.

objectiveTo explore the ACP-related values and beliefs of diverse African American communities across the USA and then the perceived value of an inexpensive end-of-life conversational game.

designProspective, convergent, mixed methods cohort study involving fifteen underserved, African American communities across the USA.

participantsOf the 428 who attended events at purposively sampled sites, 90% consented to the research; 37% participated in one of 15 focus groups (n = 141).

interventionAn end-of-life conversation game, played in groups of 4-6. MAIN MEASURES: The validated, 7-item ACP values and beliefs questionnaire (scaled 7 = least skeptical, 49 = most skeptical) was administered pre-game. Post-game focus groups explored perceptions about ACP and the intervention. KEY

resultsParticipants had positive attitudes (low skepticism) about ACP with a median score of 12.00 (7.00, 20.00). Values and beliefs did not significantly differ by geographical region; however, rural areas were observed to be slightly more skeptical than urban areas (median score 14.00 vs. 11.00, p = 0.002). Themes from focus groups converged with survey data showing participants valued the ACP process and consider further engagement in ACP to be worthwhile. Subthemes emphasized the need for and value of ACP.

conclusionsSkepticism about ACP may contribute to low rates of ACP engagement in underserved African American communities. The positive attitudes uncovered in our study either negate previous findings or suggest reduced skepticism.

trial registrationThis study has been registered at clinicaltrials.gov ( NCT03456921 ).

Indexed as

Advance Care PlanningBlack or African AmericanCohort StudiesHumansOptimismProspective Studiesadvance care planningEnd-of-life careHealth disparitiesUnderserved communities

Identifiers

PMID32948953
PMCPMC7947044
OpenAlexW3087478520

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.