ArticleJMIR mental health2020
The VOICES Typology of Curatorial Decisions in Narrative Collections of the Lived Experiences of Mental Health Service Use, Recovery, or Madness: Qualitative Study.
Article in JMIR mental health, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
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Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Uses and Misuses of Recorded Mental Health Lived Experience Narratives in Healthcare and Community Settings: Systematic Review.Schizophrenia bulletin · 2022Pooled it
- Ethical and Legal Considerations in the Collection and Analysis of Mental Health Lived Experience Narratives: Reflections on 4 Case Studies of Research Practice.JMIR formative research · 2026Article
- The Implementation of Recommender Systems for Mental Health Recovery Narratives: Evaluation of Use and Performance.JMIR mental health · 2024Article
- Perception and appropriation of a web-based recovery narratives intervention: qualitative interview study.Frontiers in digital health · 2024Article
- Transient Elastography and Video Recovery Narrative Access to Support Recovery From Alcohol Misuse: Development of a Novel Intervention for Use in Community Alcohol Treatment Services.JMIR formative research · 2023Article
- 'Maybe I Shouldn't Talk': The Role of Power in the Telling of Mental Health Recovery Stories.Qualitative health research · 2022Article
- Article
- Development and delivery cost of digital health technologies for mental health: Application to the Narrative Experiences Online Intervention.Frontiers in psychiatry · 2022Article
- Recorded Mental Health Recovery Narratives as a Resource for People Affected by Mental Health Problems: Development of the Narrative Experiences Online (NEON) Intervention.JMIR formative research · 2021Article
- The Influence of Curator Goals on Collections of Lived Experience Narratives: A Qualitative Study.Journal of recovery in mental health · 2021Article
- Article
- Opportunities, Enablers, and Barriers to the Use of Recorded Recovery Narratives in Clinical Settings.Frontiers in psychiatry · 2020Article
Corrections and comments
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Authors and funding
14 authors.
Funding
Abstract
backgroundCollections of lived experience narratives are increasingly used in health research and medical practice. However, there is limited research with respect to the decision-making processes involved in curating narrative collections and the work that curators do as they build and publish collections.
objectiveThis study aims to develop a typology of curatorial decisions involved in curating narrative collections presenting lived experiences of mental health service use, recovery, or madness and to document approaches selected by curators in relation to identified curatorial decisions.
methodsA preliminary typology was developed by synthesizing the results of a systematic review with insights gained through an iterative consultation with an experienced curator of multiple recovery narrative collections. The preliminary typology informed the topic guide for semistructured interviews with a maximum variation sample of 30 curators from 7 different countries. All participants had the experience of curating narrative collections of the lived experiences of mental health service use, recovery, or madness. A multidisciplinary team conducted thematic analysis through constant comparison.
resultsThe final typology identified 6 themes, collectively referred to as VOICES, which stands for values and motivations, organization, inclusion and exclusion, control and collaboration, ethics and legal, and safety and well-being. A total of 26 subthemes related to curation decisions were identified.
conclusionsThe VOICES typology identifies the key decisions to consider when curating narrative collections about the lived experiences of mental health service use, recovery, or madness. It might be used as a theoretical basis for a good practice resource to support curators in their efforts to balance the challenges and sometimes conflicting imperatives involved in collecting, organizing, and sharing narratives. Future research might seek to document the use of such a tool by curators and hence examine how best to use VOICES to support decision making.
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