ArticleThe American journal of bioethics : AJOB2020
Reassessing the Ethics of Molecular HIV Surveillance in the Era of Cluster Detection and Response: Toward HIV Data Justice.
Article in The American journal of bioethics : AJOB, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 44 papers.
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Who cites it
44 citing papers in PubMed.
- Impact of Legal Perceptions and Disclosure on Willingness to Undergo HIV Antiretroviral Resistance Testing Among Men Who Have Sex with Men: A Brief Report.AIDS and behavior · 2026Trial
- Community Perceptions Regarding use of HIV Molecular Epidemiology for Public Health in Victoria, Australia: Qualitative Findings.Journal of bioethical inquiry · 2026Article
- Problems of equity in US HIV integrated planning, 2015-2021: Enacting a bounded justice continuum.Health (London, England : 1997) · 2026Article
- Advancing Precision Public Health: an implementation science framework for HIV Cluster Detection and Response driven by molecular epidemiology.Frontiers in public health · 2026Article
- Phylogenetics and molecular evolution to understand and curb the HIV pandemic.Nature reviews. Microbiology · 2026Review
- More evidence is needed to improve molecular HIV surveillance for cluster detection and response.Communications medicine · 2025Article
- Ethics of Identifying Individuals Involved in HIV Transmission Events by Phylogenetics in Molecular Surveillance.Bioethics · 2025Article
- Risks, concerns, and benefits of molecular HIV Epidemiology in Public Health Practice: A qualitative exploration of perspectives among affected and interested communities.Journal of public health research · 2025Article
- Article
- Achieving Greater Transparency Regarding Molecular HIV Surveillance: A Proposal to Move Beyond the Status Quo.Open forum infectious diseases · 2025Article
- Clinician perspectives on disclosing public health uses of HIV antiretroviral resistance testing results.Journal of acquired immune deficiency syndromes (1999) · 2025Article
- Health-Related Stigma: The Affordances of Electronic Health Management Systems in the Production of Structural Stigma.Sociology of health & illness · 2025Article
- Proposed approaches for public health surveillance: A literature review for the Canadian National HIV Surveillance Program.Canada communicable disease report = Releve des maladies transmissibles au Canada · 2025Article
- Action needed to address molecular HIV surveillance ethical concerns.Canadian journal of public health = Revue canadienne de sante publique · 2025Article
- Molecular HIV Surveillance: Beyond Cluster Detection and Response.AIDS research and human retroviruses · 2025Article
- The Use of Residual Blood Specimens in Seroprevalence Studies for Vaccine-Preventable Diseases: A Scoping Review.Vaccines · 2025Review
- Perceptions of Molecular HIV Surveillance Among Men Who Have Sex with Men in the United States.AIDS and behavior · 2025Article
- Navigating ethics in HIV data and biomaterial management within Black, African, and Caribbean communities in Canada.BMC medical ethics · 2025Article
- Consent in the practice of molecular HIV epidemiology: A qualitative study of the perspectives of diverse communities of interest.PloS one · 2025Article
- HIV phylogenetic clusters point to unmet hiv prevention, testing and treatment needs among men who have sex with men in kenya.BMC infectious diseases · 2024Article
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
In the United States, clinical HIV data reported to surveillance systems operated by jurisdictional departments of public health are re-used for epidemiology and prevention. In 2018, all jurisdictions began using HIV genetic sequence data from clinical drug resistance tests to identify people living with HIV in "clusters" of others with genetically similar strains. This is called "molecular HIV surveillance" (MHS). In 2019, "cluster detection and response" (CDR) programs that re-use MHS data became the "fourth pillar" of the national HIV strategy. Public health re-uses of HIV data are done without consent and are a source of concern among stakeholders. This article presents three cases that illuminate bioethical challenges associated with re-uses of clinical HIV data for public health. We focus on evidence-base, risk-benefit ratio, determining directionality of HIV transmission, consent, and ethical re-use. The conclusion offers strategies for "HIV data justice." The essay contributes to a "bioethics of the oppressed."
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