Evidence map›Paper›PMID 32942941›Full record

ArticleJournal of child neurology2021

Youth Weigh In: Views on Advanced Neurotechnology for Drug-Resistant Epilepsy.

Farhad R Udwadia, Patrick J McDonald, Mary B Connolly, Viorica Hrincu, Judy Illes

Open access · greenAbstract read
In one paragraph

Article in Journal of child neurology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
0.9field-weighted citation impact, top 26% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 7 citations in OpenAlex.

  1. Review
  2. Article
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 1 institution in 1 country.

Farhad R UdwadiaNeuroethics Canada, Division of Neurology, Department of Medicine, 8166University of British Columbia, Vancouver, British Columbia, Canada.
Patrick J McDonaldNeuroethics Canada, Division of Neurology, Department of Medicine, 8166University of British Columbia, Vancouver, British Columbia, Canada.
Mary B ConnollyDivision of Pediatric Neurology, Department of Pediatrics, 8166University of British Columbia, Vancouver, British Columbia, Canada.
Viorica HrincuNeuroethics Canada, Division of Neurology, Department of Medicine, 8166University of British Columbia, Vancouver, British Columbia, Canada.
Judy IllesNeuroethics Canada, Division of Neurology, Department of Medicine, 8166University of British Columbia, Vancouver, British Columbia, Canada.ORCID 0000-0002-4791-8084
University of British Columbia · CA

Funding

Informing Choice for Neurotechnological Innovation in Pediatric Epilepsy SurgeryRF1MH117805 · NIMH · UNIVERSITY OF BRITISH COLUMBIA · PI ILLES, JUDY, MCDONALD, PATRICK · 2018 to 2018
$534k
NIMH NIH HHS RF1 MH117805
6 · The paper itself

Abstract

backgroundEpilepsy affects over 500,000 children in North America of whom 30% have drug-resistant epilepsy. Advancements with neurotechnologies show promising benefits, but the perceptions of these procedures by youth is unknown.

methodsWe conducted semistructured interviews with 10 youth in British Columbia, Canada who underwent procedures for drug-resistant epilepsy involving different forms of neurotechnology (subdural grids, vagus nerve stimulation, responsive neurostimulation). Interviews were analyzed using the constant comparative qualitative method.

resultsFour major thematic categories emerged from the interviews. Treatment values, impact of the disorder, personal context, and impact of neurotechnology.

conclusionsBesides the predictable goal of seizure reduction, a desire for autonomy and the importance of trust in the medical team emerged as dominant values within the 4 thematic categories that were explicit to the use of new neurotechnologies for the management of drug-resistant epilepsy.

Indexed as

AdolescentBritish ColumbiaChildDrug Resistant EpilepsyElectric Stimulation TherapyFemaleHumansInterviews as TopicMalePersonal AutonomyTreatment OutcomeTrustYoung Adultadolescentschildrenepilepsyneurosurgeryrefractoryseizures

Identifiers

PMID32942941
PMCPMC7775323
OpenAlexW3087294148

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.