Evidence map›Paper›PMID 32941806›Full record

Observational studyThe Brazilian journal of infectious diseases : an official publication of the Brazilian Society of Infectious Diseases

Limitations in daily activities, risk awareness, social participation, and pain in patients with HTLV-1 using the SALSA and Participation scales.

Cintia Yolette Urbano Pauxis Aben-Athar, Denise da Silva Pinto, Sandra Souza Lima, Izaura Maria Vieira Cayres Vallinoto, Ricardo Ishak, Antonio Carlos Rosário Vallinoto

Abstract readObservational Study
PubMed Full text at PMC Publisher
In one paragraph

Observational study in The Brazilian journal of infectious diseases : an official publication of the Brazilian Society of Infectious Diseases. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Cintia Yolette Urbano Pauxis Aben-AtharUniversidade Federal do Pará, Instituto de Ciências Biológicas, Laboratório de Virologia, Pará, PA, Brazil.
Denise da Silva PintoUniversidade Federal do Pará, Instituto de Ciências da Saúde, Laboratório de Estudos em Reabilitação Funcional (LAERF), Belém, PA, Brazil.
Sandra Souza LimaUniversidade Federal do Pará, Instituto de Ciências Biológicas, Laboratório de Virologia, Pará, PA, Brazil.
Izaura Maria Vieira Cayres VallinotoUniversidade Federal do Pará, Instituto de Ciências Biológicas, Laboratório de Virologia, Pará, PA, Brazil.
Ricardo IshakUniversidade Federal do Pará, Instituto de Ciências Biológicas, Laboratório de Virologia, Pará, PA, Brazil.
Antonio Carlos Rosário VallinotoUniversidade Federal do Pará, Instituto de Ciências Biológicas, Laboratório de Virologia, Pará, PA, Brazil. Electronic address: vallinoto@ufpa.br.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundTropical spastic paraparesis or HTLV-associated myelopathy (TSP/HAM) may prevent, limit or restrict the performance of daily living activities, and as a consequence, several aspects of life are affected.

objectiveThe aim of this study was to evaluate activity limitations, risk awareness, social participation, quality of life, and pain in individuals infected with HTLV-1.

methodsThis was an observational, descriptive, analytical, cross-sectional study with a quantitative approach. An interview questionnaire, the Screening of Activity Limitation and Safety Awareness (SALSA) scale, the Participation scale, a quality of life questionnaire (SF-36) and the Brief Pain Inventory were used.

resultsA total of 55 patients with HTLV-1 were interviewed (62% asymptomatic and 38% symptomatic). In both groups, there was a higher frequency of patients aged 41-50 years old (35.3% asymptomatic and 38.1% symptomatic), with complete secondary education (47.1% asymptomatic and 42.9% symptomatic), and married (64.7% asymptomatic and 52.4% symptomatic). Of the symptomatic patients, 33.3% were retired; among asymptomatic patients, 20.6% performed domestic activities. The majority of patients in both groups had not received blood transfusions. Sexual intercourse was still practiced by patients. After assessment, asymptomatic patients had no activity limitations (64.7%), and symptomatic patients presented limitations (90.5%). None of the groups showed good risk awareness. There was no restriction on social participation in 97.1% of asymptomatic patients and in 52.4% among symptomatics. Both groups complained of pain, being more frequent in the lumbar spine in asymptomatic patients and in the knees in symptomatic patients. Pain was more severe in symptomatic patients and affected aspects of quality of life.

conclusionThe clinical follow-up instruments must be adopted by healthcare professionals to monitor new symptoms so as to avoid the onset of limitations identified in symptomatic patients, in addition to enabling continuous surveillance of asymptomatic patients.

Indexed as

HTLV-I InfectionsHuman T-lymphotropic virus 1Paraparesis, Tropical SpasticAdultCross-Sectional StudiesHumansMiddle AgedPainQuality of LifeSocial ParticipationDaily activities limitationHTLV-1SALSA and social Participation scalesSocial and quality of life

Identifiers

PMID32941806
PMCPMC9392093

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.