Evidence map›Paper›PMID 32935204›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2021

Perceptions of time spent pursuing cancer care among patients, caregivers, and oncology professionals.

Evan T Hall, Deepa Sridhar, Surbhi Singhal, Touran Fardeen, Sheila Lahijani, Ranak Trivedi, Caroline Gray, Lidia Schapira

Abstract read
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In one paragraph

Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
21citing papers in PubMed, 2 pooled it
1.8field-weighted citation impact, top 14% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

21 citing papers in PubMed, 2 syntheses or guidelines pooled it, 20 citations in OpenAlex.

  1. Cancer patients' experiences of "time toxicity": a qualitative meta-synthesis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Pooled it
  2. Pooled it
  3. Trial
  4. Healthcare contact days in cancer survivors relative to those with no cancer history.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  5. Between Ideal and Actual Care: Patients' and Family Carers' Experiences of Cancer Care Relationships.European journal of investigation in health, psychology and education · 2026
    Article
  6. Article
  7. Article
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  9. Review
  10. The weight of time: experience of time toxicity among advanced cancer patients and their family caregivers-a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
  11. Article
  12. Article
  13. Article
  14. Reporting time toxicity in prospective cancer clinical trials: A scoping review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024
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  15. Review
  16. Article
  17. Article
  18. Article
  19. Article
  20. Care provided by older adult caregivers to a spouse in active cancer treatment: a scoping review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 5 institutions in 2 countries.

Evan T HallDivision of Medical Oncology, University of Washington, 825 Eastlake Ave E, Mail Stop CE2-102, Seattle, WA, 98115, USA. evanh@uw.edu.ORCID http://orcid.org/0000-0002-0305-7745
Deepa SridharCollege of Osteopathic Medicine, New York Institute of Technology, Old Westbury, NY, USA.
Surbhi SinghalDivision of Medicine, Stanford University, Stanford, CA, USA.
Touran FardeenStanford Healthcare, Stanford, CA, USA.
Sheila LahijaniDepartment of Psychiatry and Behavioral Sciences, Stanford University, Stanford, CA, USA.
Ranak TrivediDepartment of Psychiatry and Behavioral Sciences, Stanford University, Stanford, CA, USA.
Caroline GrayVA Palo Alto Healthcare System, Palo Alto, CA, USA.
Lidia SchapiraStanford Cancer Institute, Stanford University, Stanford, CA, USA.
Stanford University · USVA Palo Alto Health Care System · USCape Town HVTN Immunology Laboratory / Hutchinson Centre Research Institute of South Africa · ZANew York Institute of Technology · USStanford Health Care · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposePatients with cancer spend significant time receiving treatment and recovering from side effects. Little is known about how patients and their caregivers perceive time spent receiving cancer treatment and how this impacts health-related quality of life (HRQoL). Our study aims to characterize perceptions of time invested in receiving cancer therapy as experienced by patients, caregivers, and oncology professionals.

methodsWe conducted semi-structured interviews with patients undergoing treatment for advanced lung cancer and melanoma, their informal caregivers, and oncology professionals (physicians, nurses, social workers, and chaplains). Participants received and provided care at a tertiary cancer center. Interviews were audiorecorded and transcribed verbatim. Transcripts were analyzed qualitatively using predominantly inductive coding to identify themes relating to time perception and cancer care.

resultsWe interviewed 29 participants (11 patients, 7 informal caregivers, and 11 oncology professionals) and found they consistently differentiated between time remaining in life ("existential time") and time required to manage cancer treatment and symptoms ("chronological time"). Patients and caregivers reported distress around the mechanics of oncologic care that interrupted their daily lives (hobbies, activities). Participants described the impact of time invested in cancer care on dimensions of quality of life, ranging from minimal to substantial negative impact.

conclusionsWe found that the time spent undergoing cancer treatment affects well-being and often prevents patients and caregivers from participating in meaningful activities. The investment of personal time undergoing cancer therapy for patients with advanced solid tumors merits further study and can enhance communication between patients, caregivers, and their oncologists.

Indexed as

AdultAgedAged, 80 and overCaregiversFemaleHumansMaleMiddle AgedNeoplasmsOncologistsPerceptionQuality of LifeTime FactorsCancerCancer care logisticsExistential distressQuality of life

Identifiers

PMID32935204
OpenAlexW3084891691

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.