ReviewJournal of the American Medical Informatics Association : JAMIA2020
A rapid review of gender, sex, and sexual orientation documentation in electronic health records.
Review in Journal of the American Medical Informatics Association : JAMIA, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 38 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
38 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Lesbian, Gay, Bisexual, Transgender and Queer People's Experiences of Stigma Across the Spectrum of Inpatient Psychiatric Care: A Systematic Review.International journal of mental health nursing · 2025Pooled it
- Improving radiology information systems for inclusivity of transgender and gender-diverse patients: what are the problems and what are the solutions? A systematic review.Journal of medical radiation sciences · 2024Pooled it
- Sex and gender classification in clinical decision-support tools: a cross-sectional review of tools on MDCalc.Biology of sex differences · 2026Review
- Understanding Patient-Reported Offenses in Electronic Health Records: Cross-Sectional Mixed Methods Survey.Journal of medical Internet research · 2026Article
- Long-Term Survival Disparities by Race and Ethnicity Among Cancer Survivors in United States.Cancer medicine · 2026Article
- Characteristics of drug-related deaths among individuals identified as LGBTQ+ in the United Kingdom, 1997-2024.Addiction (Abingdon, England) · 2026Article
- When algorithms infer gender: revisiting computational phenotyping with electronic health records data.Biology of sex differences · 2025Review
- Availability of sexual orientation and gender identity (SOGI) information in a cohort of transgender and gender diverse people: An analysis of electronic health records.Annals of epidemiology · 2025Article
- Beyond the Binary: On the Multiplicity of Sex and Gender in a Western-Centric World.Archives of sexual behavior · 2025Article
- Pain-Related and Psychosocial Functioning in Gender-Diverse Youth with Chronic Pain Prior to and Following the Start of the COVID-19 Pandemic.Journal of clinical psychology in medical settings · 2025Article
- A Scoping Review of Methodological Approaches to Detect Bias in the Electronic Health Record.Stigma and health · 2025Article
- Comorbidities associated with a clinically-recognized delirium diagnosis in the hospital using real world data.Communications medicine · 2025Article
- Patient care practices for LGBTQ+ individuals in clinical genetics: A scoping review.Journal of genetic counseling · 2025Article
- Social-ecological barriers and facilitators to seeking inpatient psychiatric care among transgender and nonbinary people: A qualitative descriptive study.Journal of advanced nursing · 2025Article
- Unveiling the patterns: exploring social and clinical characteristics of frequent mental health visits to the emergency department-a comprehensive systematic review.Discover mental health · 2024Review
- Health-Outcomes and Epidemiologic Research of Transgender Patients Requires Simple, Meaningful Diagnostic Codes: A Retrospective Review of California Emergency Department Visits.Journal of surgery and research · 2024Article
- Pain mechanisms in the transgender individual: a review.Frontiers in pain research (Lausanne, Switzerland) · 2024Review
- Identifying and Characterizing the Transgender and Nonbinary Population Presenting to Pediatric Psychiatry Emergency Services.AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science · 2024Article
- Modernizing Gender, Sex, and Sexual Orientation Data Through Engagement and Education.Journal of medical Internet research · 2023Article
- Database quality assessment in research in paramedicine: a scoping review.Scandinavian journal of trauma, resuscitation and emergency medicine · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
objectiveThe lack of precise and inclusive gender, sex, and sexual orientation (GSSO) data in electronic health records (EHRs) is perpetuating inequities of sexual and gender minorities (SGM). We conducted a rapid review on how GSSO documentation in EHRs should be modernized to improve the health of SGM. MATERIALS AND
methodsWe searched MEDLINE from 2015 to 2020 with terms for gender, sex, sexual orientation, and electronic health/medical records. Only literature reviews, primary studies, and commentaries from peer-reviewed journals in English were included. Two researchers screened citations and reviewed articles with help from a third to reach consensus. Covidence, Excel, and Atlas-TI were used to track articles, extract data, and synthesize findings, respectively.
resultsThirty-five articles were included. The 5 themes to modernize GSSO documentation in EHRs were (1) creating an inclusive, culturally competent environment with precise terminology and standardized data collection; (2) refining guidelines for identifying and matching SGM patients with their care needs; (3) improving patient-provider relationships by addressing patient rights and provider competencies; (4) recognizing techno-socio-organizational aspects when implementing GSSO in EHRs; and (5) addressing invisibility of SGM by expanding GSSO research.
conclusionsThe literature on GSSO documentation in EHRs is expanding. While this trend is encouraging, there are still knowledge gaps and practical challenges to enabling meaningful changes, such as organizational commitments to ensure affirming environments, and coordinated efforts to address technical, organizational, and social aspects of modernizing GSSO documentation. The adoption of an inclusive EHR to meet SGM needs is a journey that will evolve over time.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.