Evidence map›Paper›PMID 32935043›Full record

ArticleInternational journal of population data science2019

Data Centre Profile: The Provincial Health Data Centre of the Western Cape Province, South Africa.

A Boulle, A Heekes, N Tiffin, M Smith, T Mutemaringa, N Zinyakatira, F Phelanyane, C Pienaar, K Buddiga, E Coetzee and 8 more

Abstract read
In one paragraph

Article in International journal of population data science, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 124 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
124citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

124 citing papers in PubMed, 2 syntheses or guidelines pooled it.

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64 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

18 authors.

A BoulleDepartment of Health, Provincial Government of the Western Cape, Cape Town, South Africa.
A HeekesDepartment of Health, Provincial Government of the Western Cape, Cape Town, South Africa.
N TiffinDepartment of Health, Provincial Government of the Western Cape, Cape Town, South Africa.
M SmithDepartment of Health, Provincial Government of the Western Cape, Cape Town, South Africa.
T MutemaringaDepartment of Health, Provincial Government of the Western Cape, Cape Town, South Africa.
N ZinyakatiraDepartment of Health, Provincial Government of the Western Cape, Cape Town, South Africa.
F PhelanyaneDepartment of Health, Provincial Government of the Western Cape, Cape Town, South Africa.
C PienaarDepartment of Health, Provincial Government of the Western Cape, Cape Town, South Africa.
K BuddigaDepartment of Health, Provincial Government of the Western Cape, Cape Town, South Africa.
E CoetzeeDepartment of Health, Provincial Government of the Western Cape, Cape Town, South Africa.
R van RooyenDepartment of Health, Provincial Government of the Western Cape, Cape Town, South Africa.
R DyersDepartment of Health, Provincial Government of the Western Cape, Cape Town, South Africa.
N FredericksDepartment of Health, Provincial Government of the Western Cape, Cape Town, South Africa.
A LoffDepartment of Health, Provincial Government of the Western Cape, Cape Town, South Africa.
L ShandDepartment of Health, Provincial Government of the Western Cape, Cape Town, South Africa.
M MoodleyDepartment of Health, Provincial Government of the Western Cape, Cape Town, South Africa.
I de VegaDepartment of Health, Provincial Government of the Western Cape, Cape Town, South Africa.
K VallabhjeeDepartment of Health, Provincial Government of the Western Cape, Cape Town, South Africa.

Funding

Observational Antiretroviral Studies In Southern Africa (OASIS) CollaborationU01AI069924 · NIAID · UNIVERSITAT BERN · PI Cleophas Chimbetete, Mary-Ann Davies · 2006 to 2026
$55.9M
B positive_A population based evaluation of expanded ART access in pregnancyR01HD080465 · NICHD · UNIVERSITY OF CAPE TOWN · PI KALK, EMMA KATE · 2014 to 2019
$4.3M
NIAID NIH HHS U01 AI069924NICHD NIH HHS R01 HD080465Wellcome Trust
6 · The paper itself

Abstract

introductionThe Western Cape Provincial Health Data Centre (PHDC) consolidates person-level clinical data across government services, leveraging sustained investments in patient registration systems, a unique identifier, and maturation of administrative and clinical digital health systems.

objectivesThe PHDC supports clinical care directly through tools for clinicians which integrate patient data or identify patients in need of interventions, and indirectly through supporting operational and epidemiological analyses.

methodsThe PHDC is housed entirely within government. Data are processed from a range of source systems, usually daily, through distinct harmonisation and curation, beneficiation, and reporting processes. Linkage is predominantly through the unique identifier which doubles as a pervasive folder number, augmented by other identifiers. Further data processing includes triangulation of multiple data sources for enumerating health conditions, with assignment of certainty levels for each enumeration. Outputs include patient-specific email alerts, a web-based consolidated patient clinical viewing platform, filterable line-listings of patients with specific conditions and associated characteristics and outcomes, management reports and dashboards, and data releases in response to operational and research data requests. Strict architectural, administrative and governance processes ensure privacy protection.

resultsIn the past decade 8 million unique people are recorded as having sought healthcare in the provincial public sector health services, with current utilisation at 15 million attendances or admissions a year. Cross-sectional enumeration of health conditions includes over 430 000 people with HIV, 500 000 with hypertension, 235 000 with diabetes. Annually 110 000 pregnancies and 54 000 patients with tuberculosis are enumerated. Over 50 data requests are processed each year for internal and external requesters in accordance with data request and release governance processes.

conclusionsThe single consolidated environment for person-level health data in the Western Cape has created new opportunities for supporting patient care, while improving the governance around access to and release of sensitive patient data.

Identifiers

PMID32935043
PMCPMC7482518

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.