ArticleBMJ open2020
Six countries, six individuals: resourceful patients navigating medical records in Australia, Canada, Chile, Japan, Sweden and the USA.
Article in BMJ open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
12 citing papers in PubMed.
- Low use of data analytics for health sector priority-setting in Ghana: A case for strengthening analytical capacity.PLOS global public health · 2026Article
- Patient and family contributions to improve the diagnostic process through the OurDX electronic health record tool: a mixed method analysis.BMJ quality & safety · 2024Article
- Do patients who read visit notes on the patient portal have a higher rate of "loop closure" on diagnostic tests and referrals in primary care? A retrospective cohort study.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Experiences of Patients With Mental Health Issues Having Web-Based Access to Their Records: National Patient Survey.JMIR mental health · 2024Article
- A Patient-Centered Approach to Writing Ambulatory Visit Notes in the Cures Act Era.Applied clinical informatics · 2023Article
- Patient Identification of Diagnostic Safety Blindspots and Participation in "Good Catches" Through Shared Visit Notes.The Milbank quarterly · 2022Article
- From Individuals to Systems and Contributions to Creations: Novel Framework for Mapping the Efforts of Individuals by Convening The Center of Health and Health Care.Journal of participatory medicine · 2022Article
- Patients, clinicians and open notes: information blocking as a case of epistemic injustice.Journal of medical ethics · 2022Article
- Use of and Experiences With Online Access to Electronic Health Records for Parents, Children, and Adolescents: Protocol for a Scoping Review.JMIR research protocols · 2022Article
- Patients' Access to Their Psychiatric Notes: Current Policies and Practices in Sweden.International journal of environmental research and public health · 2021Article
- Speaking up about patient-perceived serious visit note errors: Patient and family experiences and recommendations.Journal of the American Medical Informatics Association : JAMIA · 2021Article
- What do patients consider sensitive health information? A cross-sectional survey of national patient portal users.Digital healthArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
In the absence of international standards, widely differing attitudes and laws, medical and social cultures strongly influence whether and how patients may access their medical records in various settings of care. Reviewing records, including the notes clinicians write, can help shape how people participate in their own care. Aided at times by new technologies, individual patients and care partners are repurposing existing tools and designing innovative, often 'low-tech' ways to collect, sort and interpret their own health information. To illustrate diverse approaches that individuals may take, six individuals from six nations offer anecdotes demonstrating how they are learning to collect, assess and benefit from their personal health information.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.