ArticleInternational journal of environmental research and public health2020
The Role of Social Support in Participation Perspectives of Caregivers of Children with Intellectual Disabilities in India and South Africa.
Article in International journal of environmental research and public health, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed.
- Effect of multidisciplinary interventions using the Enabling Inclusion® program on gross motor function and functional independence in children with disabilities in rural South India.BMC pediatrics · 2025Article
- Perspectives of practitioners on support for caregivers of children with intellectual disability.Curationis · 2024Article
- Barriers and facilitators to participation in everyday activities for children with intellectual disabilities in China.Child: care, health and development · 2023Article
- Developing a psychoeducational programme for caregivers of people with intellectual disability.African journal of disability · 2023Article
- Participation and Inclusion of Children and Youth with Disabilities in Local Communities.International journal of environmental research and public health · 2022Article
- Community Support for Persons with Disabilities in Low- and Middle-Income Countries: A Scoping Review.International journal of environmental research and public health · 2022Article
- Broadening the scope of social support, coping skills and resilience among caretakers of children with disabilities in Uganda: a sequential explanatory mixed-methods study.BMC public health · 2022Article
- Cross-Cultural Adaptation and Evaluation of the Participation and Environment Measure for Children and Youth to the Indian Context-A Mixed-Methods Study.International journal of environmental research and public health · 2021Article
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3 authors.
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Abstract
Caregivers are an intrinsic component of the environment of children with intellectual disabilities. However, caregivers' capacity to support children's participation may be linked to the social support that they, as caregivers, receive. Social support may increase participation, educational, psychological, medical and financial opportunities. However, there is a lack of information on social support in middle-income countries. The current study described and compared the social support of caregivers of children with intellectual disabilities by using the Family Support Survey (FSS) in India and South Africa. The different types of social support were subsequently considered in relation to participation, using the Children's Assessment of Participation and Enjoyment (CAPE). One hundred caregiver-child dyads from India and 123 from South Africa participated in this study. The data were analysed using non-parametric measures. Indian caregivers reported greater availability of more helpful support than did the South African caregivers. Social support was associated with children's participation diversity (India) and intensity (South Africa). The child-/caregiver-reported participation data showed different associations with participation. Results from this study suggest that perceived social support of caregivers differs between countries and is associated with their child's participation. These factors need to be considered when generalising results from different countries.
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