ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2021
What are the sources of distress in a range of cancer caregivers? A qualitative study.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it, 40 citations in OpenAlex.
- Open Online Courses for Informal Carers: Systematic Integrative Review.Journal of medical Internet research · 2025Pooled it
- Designing a need-based program for relieving psychological distress of family caregivers of leukemia patients: a randomized controlled trial.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Trial
- Article
- Evaluating an AI-Enabled Mobile Mental Health Monitoring Tool Among Family Caregivers of Adults Living With Cancer: Single-Arm Feasibility and Acceptability Trial Protocol.JMIR research protocols · 2026Article
- "The Day He Fell Ill, We Turned on a Switch…Now, Everything Is My Responsibility": Scoping Review of Qualitative Studies Among Partners of Patients with Cancer.Current oncology (Toronto, Ont.) · 2026Review
- How a physical exercise program performed by patients may impact caregiver burden in cancer: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Informational Needs of Lung Cancer Patients and Caregivers.Journal of cancer education : the official journal of the American Association for Cancer Education · 2025Article
- "It's a delicate dance": How informal caregivers experience the role and responsibilities of supporting someone living with a lower-grade glioma.Neuro-oncology practice · 2025Article
- Moral distress among family caregivers of people with cancer in palliative care: A qualitative study.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2025Article
- A conceptual model of the nurse's role as primary palliative care provider in goals of care communication.PEC innovation · 2024Article
- Caring through uncertainty: a qualitative exploration of older colorectal cancer caregivers' experiences during palliative chemotherapy.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Informing a Future Clinician-Led Virtual Reality Experience Through Oncology Caregivers' Pre-Treatment Preparation Experiences.Delaware journal of public health · 2024Article
- A chain mediation model reveals the association between family sense of coherence and quality of life in caregivers of advanced cancer patients.Scientific reports · 2024Observational
- Psychosocial Experiences, Challenges, and Recommendations for Care Delivery among Partners of Breast Cancer Survivors: A Qualitative Study.International journal of environmental research and public health · 2023Article
- Evaluation of a supportive care app for coordinating caring networks: an analysis of the first 19,000 users.Frontiers in digital health · 2023Article
- The experience of being a caregiver of patients with digestive cancer, from patients and caregivers' perception: A mixed study.PloS one · 2023Article
- Prevalence of distress and its associated factors among caregivers of people diagnosed with cancer: A cross-sectional study.Journal of clinical nursing · 2022Observational
- Men's perspectives of caring for a female partner with cancer: A longitudinal narrative study.Health & social care in the community · 2022Article
- Understanding the experiences of older caregivers of patients with lung cancer during palliative chemotherapy in China: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Caring experiences of family caregivers of patients with pancreatic cancer: an integrative literature review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Review
Corrections and comments
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Authors and funding
5 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeCaring for a person diagnosed with cancer is associated with elevated distress that may impact on caregiver health and patient outcomes. However, caregivers' distress is relatively under-researched. This Australian study explored a range of caregivers' reported sources of distress.
methodsThe grounded theory approach informed semi-structured interviews that were conducted with a purposive and broad range sample of distressed caregivers identified through the 'Structured Triage And Referral by Telephone' (START) trial. A grounded theory framework was used to generate themes with data analysed by two independent coders using the NVivo software.
resultsCaregivers (n = 14) were aged from 25 to 80 years, including two bereaved caregivers. The relationships of the caregivers to the patients were as follows: partner (n = 8), parent (n = 1), child (n = 3), sibling (n = 1), and friend (n = 1). Six major themes emerged in relation to sources of distress: (1) a lack of sufficient and timely information; (2) uncertainty; (3) the role and duties of caregiving; (4) lack of family-centred services; (5) practical challenges; and (6) impact of distress.
conclusionCaregivers face a number of specific challenges beyond those experienced by patients. It is essential to ensure that caregivers are actively well-informed and well-supported alongside the person who is diagnosed with cancer.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.