ArticleSocial psychiatry and psychiatric epidemiology2021
Is it feasible to assess self-reported quality of life in individuals who are deaf and have intellectual disabilities?
Article in Social psychiatry and psychiatric epidemiology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
13 citing papers in PubMed, 2 syntheses or guidelines pooled it, 18 citations in OpenAlex.
- Pooled it
- Quality of life measurement tools for people with dementia and intellectual disabilities: A systematic review.Journal of applied research in intellectual disabilities : JARID · 2023Pooled it
- A Comprehensive Toolkit to Support Self-Report Questionnaires for Autistic Adults With Cognitive Disability.Journal of applied research in intellectual disabilities : JARID · 2026Article
- Non-verbal methods for assessing grief and mental health in children and individuals with additional communication needs: A scoping review.Palliative care and social practice · 2026Article
- Investigating the relationship of indoor temperature and humidity with sleeping quality in private residential care homes for persons with disabilities in Hong Kong.Frontiers in public health · 2026Article
- Evaluating the Hearing-Related Quality of Life in People With Intellectual Disabilities.Journal of intellectual disability research : JIDR · 2025Article
- Defining and measuring emotional well-being in intellectual and developmental disabilities: A scoping review.Research in developmental disabilities · 2025Article
- A scoping review of the use of visual tools and adapted easy-read approaches in Quality-of-Life instruments for adults.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Exploring spirituality and quality of life in individuals who are deaf and have intellectual disabilities.Social psychiatry and psychiatric epidemiology · 2023Article
- Intellectual Disability Profiles, Quality of Life and Maladaptive Behavior in Deaf Adults: An Exploratory Study.International journal of environmental research and public health · 2022Article
- Quality of Life of the Elderly during the COVID-19 Pandemic in Asian Countries: A Cross-Sectional Study across Six Countries.Life (Basel, Switzerland) · 2022Article
- Quality of Life: Updated Psychometric Properties and New Norm Values in a Representative German Sample Focusing Socioeconomics and Mental Health.International journal of public health · 2022Article
- Therapeutic living communities for adults who are deaf and have intellectual disabilities: A conceptual model linking social communication and mental health.International journal of developmental disabilities · 2021Article
Corrections and comments
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Authors and funding
7 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThere is consensus that Quality of Life (QOL) should be obtained through self-reports from people with intellectual Disability (ID). Thus far, there have been no attempts to collect self-reported QOL from people who are deaf and have ID.
methodsBased on an established short measure for QOL (EUROHIS-QOL), an adapted easy-to-understand sign language interview was developed and applied in a population (n = 61) with severe-to-profound hearing loss and mild-to-profound ID. Self-reports were conducted at two time points (t
resultsSelf-reported QOL was successfully administered at both time points for 44 individuals with mild and moderate ID (IQ reference age between 3.3 and 11.8 years). The self-reports showed sufficient test-retest reliability and significant correlations with the Stark QOL. As anticipated, self-reported QOL was higher than proxy-reported QOL. Test-retest reliability and internal consistency were good for self-reported QOL.
conclusionReliable and valid self-reports of QOL can be obtained from deaf adults with mild-moderate ID using standard inventories adapted to the linguistic and cognitive level of these individuals.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.