Evidence map›Paper›PMID 32919901›Full record

ArticleJournal of pediatric urology2020

User testing of a hypospadias decision aid prototype at a pediatric medical conference.

Katherine H Chan, Rosalia Misseri, Aaron Carroll, Richard M Frankel, Courtney Moore, Brandon Cockrum, Sarah Wiehe

Abstract read
In one paragraph

Article in Journal of pediatric urology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Katherine H ChanDepartment of Urology, Indiana University School of Medicine, Indianapolis, IN, USA; Department of Pediatrics: Center for Pediatric and Adolescent Comparative Effectiveness Research Indianapolis, IN, USA. Electronic address: kchubert@iupui.edu.
Rosalia MisseriDepartment of Urology, Indiana University School of Medicine, Indianapolis, IN, USA. Electronic address: rmisseri@iupui.edu.
Aaron CarrollDepartment of Pediatrics: Center for Pediatric and Adolescent Comparative Effectiveness Research Indianapolis, IN, USA. Electronic address: aecarro@iu.edu.
Richard M FrankelDepartment of Medicine, Indiana University School of Medicine, Indiana and Cleveland Clinic Learner Institute, Indianapolis, Cleveland, OH, USA. Electronic address: rfrankel@iu.edu.
Courtney MooreResearch Jam (Patient Engagement Core), Indiana Clinical and Translational Sciences Institute, Indiana University School of Medicine Indianapolis, IN, USA. Electronic address: bcockrum@iu.edu.
Brandon CockrumResearch Jam (Patient Engagement Core), Indiana Clinical and Translational Sciences Institute, Indiana University School of Medicine Indianapolis, IN, USA. Electronic address: crtnymre@iu.edu.
Sarah WieheChildren's Health Services Research Center, Indiana University School of Medicine, Indianapolis, IN, USA; Research Jam (Patient Engagement Core), Indiana Clinical and Translational Sciences Institute, Indiana University School of Medicine Indianapolis, IN, USA. Electronic address: swiehe@iu.edu.

Funding

Quality Assurance and Quality Control Project Management: Improving Submissions and Study Conduct in the Human Subjects Research Prior Approval ProcessUL1TR002529 · NCATS · INDIANA UNIVERSITY INDIANAPOLIS · PI MOE, SHARON M, WIEHE, SARAH ELIZABETH · 2018 to 2022
$27.2M
Engaging families to improve the care of patients with hypospadias - Hypospadias COVID Extension.K23DK111987 · NIDDK · UNIV OF NORTH CAROLINA CHAPEL HILL · PI CHAN, KATHERINE HUBERT · 2017 to 2021
$1.1M
NCATS NIH HHS UL1 TR002529NIDDK NIH HHS K23 DK111987
6 · The paper itself

Abstract

introductionBased on our previous qualitative work, we created a web-based decision aid (DA) prototype to facilitate shared decision-making regarding hypospadias.

objectiveThe objective of this study was to obtain rapid feedback on the prototype as part of an iterative, human-centered design process.

methodsWe conducted this study at a statewide, pediatric educational conference in May 2019, recruiting attendees by verbal/written announcements. The DA consisted of: hypospadias overview and surgery "storyboard," frequently asked questions, parent testimonials, and a values clarification exercise. Participants viewed the DA on a tablet as they participated in semi-structured, qualitative interviews covering website acceptability, usability, and preference for surgical photographs versus illustrations. Three coders used qualitative content analysis to identify themes and resolved disagreements by consensus.

resultsOf 295 conference attendees, all 50 who approached us agreed to participate. Responses from 49 participants were available for analysis: 67% female, ages 20-69, 65% Caucasian, 55% MDs. 96% of participants thought the website design matched its purpose; 59.1% preferred surgical illustrations, 8.2% preferred photos, 30.6% preferred both and 2.0% did not like either. Participants recommended improvements in: a) usability/accessibility (e.g. site navigation, visual layout, page length), b) content coverage (e.g. epidemiology, consequences of no/delayed surgery, lifelong risks), c) parent-centeredness (e.g. reading level/writing style) and d) implementation (provider tools, printable handouts). The Extended Summary Figure shows a revised image of the first step of a hypospadias repair based on feedback about participants' preferences for illustrations rather than photographs. DISCUSSION: The main strength of our study was the valuable feedback we obtained to inform critical revisions of the DA prototype. We also demonstrated the feasibility and efficacy of a conducting a usability evaluation of a web-based DA in a medical conference setting. One limitation of this study is that the relatively small population sampled limits generalizability and our findings may not reflect the views of all providers who care for hypospadias patients.

conclusionsThe vast majority of providers thought that the design of the Hypospadias Homepage matched its purpose and most preferred surgical illustrations rather than photos to demonstrate the steps of hypospadias surgery. Based on their feedback, we plan to focus our efforts in the following areas: 1) improvement of navigation/menus, 2) reduction in the amount of text per page, 3) expansion of specific content coverage and 4) inclusion of "parent-friendly" visuals such as infographics to represent quantitative data and colorful illustrations to depict hypospadias and its surgical repair.

Indexed as

HypospadiasAdultAgedChildDecision Making, SharedDecision Support TechniquesFemaleHumansMaleMiddle AgedParentsYoung AdultDecision makingHuman-centered designHypospadiasPediatricsQualitative research

Identifiers

PMID32919901
PMCPMC8788200

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.