ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2021
Priorities to improve cancer caregiving: report of a caregiver stakeholder workshop.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
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Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Suicidality risk of cancer caregivers: a systematic review and meta-analysis of observational studies.Annals of medicine · 2026Pooled it
- The burdens, coping strategies, and unmet needs of family caregivers of Chinese patients with lymphoma receiving commercial CAR-T-cell therapy: A qualitative study.Asia-Pacific journal of oncology nursing · 2026Article
- Needs of Rural Caregivers of Patients With Cancer: A Scoping Review of Evidence From North America, Europe, and Australia.Psycho-oncology · 2026Article
- It's all about the relationship: The caregiver experience of supporting a person with advanced cancer going through an LSD microdosing trial.Palliative & supportive care · 2026Article
- Training and Preparedness among Informal Cancer Caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Psychometric evaluation of the Chinese version of the Caregiver-Centered Communication Questionnaire (CCCQ) in caregivers of cancer patients.BMC nursing · 2025Article
- Communication between Caregivers of Adults with Cancer and Healthcare Professionals: a Review of Communication Experiences, Associated Factors, Outcomes, and Interventions.Current oncology reports · 2024Review
- Cancer Survivors' and Care Partners' Audio Diaries on Stress and Social Support Resources During the COVID-19 Pandemic.Seminars in oncology nursing · 2024Article
- Non-surgical nursing care for tumor patients: an overview of sedation, analgesia, and recent innovations.Frontiers in oncology · 2024Review
- Cancer caregivers at the end-of-life: How much me vs. how much we?PEC innovation · 2023Article
- Risk of Psychiatric Disorders Among Spouses of Patients With Cancer in Denmark and Sweden.JAMA network open · 2023Article
- Assessment of barriers to optimal cancer control in adult cancer treatment centres in Cameroon.Ecancermedicalscience · 2023Article
- Unmet needs, anxiety, depression, and quality of life among caregivers of adolescents and young adults with cancer: A cross-sectional study.Asia-Pacific journal of oncology nursing · 2022Article
- Understanding the experiences of older caregivers of patients with lung cancer during palliative chemotherapy in China: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Developing an mHealth Application to Coordinate Nurse-Provided Respite Care Services for Families Coping With Palliative-Stage Cancer: Protocol for a User-Centered Design Study.JMIR research protocols · 2021Article
- [Support for and involvement of family caregivers in Comprehensive Cancer Center - an Assessment of the Palliative Care Working Group within the network of Comprehensive Cancer Center funded by the German Cancer Aid].Deutsche medizinische Wochenschrift (1946) · 2021Article
- Positive psychology interventions for family caregivers coping with cancer: Who will use them?Health psychology openArticle
- Geriatric assessment for the practicing clinician: The why, what, and how.CA: a cancer journal for cliniciansReview
Corrections and comments
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Authors and funding
11 authors.
Funding
Abstract
purposeCaregivers of people with cancer represent a large, overburdened, and under-recognized part of the cancer care workforce. Research efforts to address the unmet needs of these caregivers are expanding with studies focused on caregivers' skill sets, physical and psychological health, and integration into healthcare delivery. As this field of research continues to expand, integrating caregivers' input is vital to studies to ensure that research aligns with their experiences.
methodsThis is a focus group study of 15 cancer caregivers conducted during a cancer caregiving workshop at the University of Pittsburgh in February 2020. During the workshop, caregivers reviewed, critiqued, and proposed priorities to support caregivers of adults with cancer. We used a multistage consensus building approach to identify priority areas of research and clinical practice to address caregivers' experiences and needs. We used descriptive content analysis to summarize caregivers' priorities.
resultsCaregiver-identified priorities included (1) training and information about cancer and treatment, (2) caregiver integration into the patient's healthcare delivery, (3) assistance with navigating the healthcare system, (4) focus on caregiver health and well-being, and (5) policy reform to address caregiver needs. We identified ways in which these priorities can inform cancer caregiving research and practice.
conclusionThese recommendations should be considered by researchers, clinicians, cancer center leadership, and policymakers interested in creating caregiver-focused research protocols, interventions, and support systems.
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