Evidence map›Paper›PMID 32918519›Full record

Trial reportPediatric blood & cancer2020

Shared spiritual beliefs between adolescents with cancer and their families.

Jessica Livingston, Yao I Cheng, Jichuan Wang, Matthew Tweddle, Sarah Friebert, Justin N Baker, Jessica Thompkins, Maureen E Lyon

Registry-linked trialOpen access · greenAbstract readRandomized Controlled Trial
In one paragraph

Trial report in Pediatric blood & cancer, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02693665 (Building Evidence for Effective Palliative/End of Life Care for Teens With Cancer), which is not on this map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
1.0field-weighted citation impact, top 18% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT02693665 nacompletednot on this map

Building Evidence for Effective Palliative/End of Life Care for Teens With Cancer

TypeinterventionalSponsorMaureen LyonRan2016 to 2022Enrolled260ConditionsCancerArmsFAmily CEntered Advance Care Planning for Teens with Cancer
3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 16 citations in OpenAlex.

  1. Trial
  2. Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 5 institutions in 1 country.

Jessica LivingstonGrant Thornton LLP, Arlington, Virginia.ORCID 0000-0001-7574-3085
Yao I ChengStrategic Innovative Solutions LLC, Petersburg, Florida.
Jichuan WangDivision of Biostatistics and Study Methodology, Center for Translational Research at Children's National Hospital, Washington, District of Columbia.
Matthew TweddleHaslinger Family Pediatric Palliative Care Center, Akron Children's Hospital, Akron, Ohio.
Sarah FriebertHaslinger Family Pediatric Palliative Care Center, Akron Children's Hospital, Akron, Ohio.
Justin N BakerDepartment of Oncology and Division of Quality of Life and Palliative Care, St Jude Children's Research Hospital, Memphis, Tennessee.
Jessica ThompkinsCenter for Translational Research/Children's National Research Institute at Children's National Hospital, Washington, District of Columbia.
Maureen E LyonGeorge Washington University School of Medicine and Health Sciences, Washington, District of Columbia.ORCID 0000-0002-0955-3969
Children's National · USAkron Children's Hospital · USGlobal Strategic Solutions (United States) · USSt. Jude Children's Research Hospital · USThornton Tomasetti (United States) · US

Funding

Clinical and Translational Science Institute at Children's NationalUL1TR000075 · NCATS · CHILDREN'S RESEARCH INSTITUTE · PI GUAY-WOODFORD, LISA MARIE · 2012 to 2015
$13.7M
CTSA INFRASTRUCTURE FOR PEDIATRIC RESEARCHUL1RR031988 · NCRR · CHILDREN'S RESEARCH INSTITUTE · PI GUAY-WOODFORD, LISA MARIE · 2010 to 2011
$8.2M
Building Evidence for Effective Palliative/End of Life Care for Teens with CancerR01NR015458 · NINR · CHILDREN'S RESEARCH INSTITUTE · PI LYON, MAUREEN ELLEN · 2015 to 2019
$3.4M
NCATS NIH HHS UL1 TR000075NCRR NIH HHS UL1 RR031988NIH HHS UL1RR031988NINR NIH HHS R01 NR015458NINR NIH HHS R01 NR015458-05
6 · The paper itself

Abstract

backgroundFAmily CEntered (FACE) Advance Care Planning helps family decision makers to understand and honor patients' preferences for future health care, if patients cannot communicate. Spiritual well-being is a key domain of pediatric oncology care and an integral dimension of pediatric advance care planning. PROCEDURE: As part of four-site randomized controlled trial of FACE for teens with cancer, the functional assessment of chronic illness therapy-spiritual well-being- version 4 (FACIT-Sp-EX-4) was completed independently by 126 adolescents with cancer/family dyads. The prevalence-adjusted and bias-adjusted kappa (PABAK) measured congruence on FACIT-Sp-EX-4.

resultsAdolescents (126) had mean age of 16.9 years, were 57% female and 79% White. Religious/spiritual classifications were: Catholic (n = 18), Protestant (n = 76), Mormon (n = 3), none/atheist (n = 22), other (n = 5), and unknown (n = 2). Agreement at item level between spiritual well-being of adolescents and families was assessed. Three items had ≥90% agreement and Excellent PABAK: "I have a reason for living," "I feel loved," "I feel compassion for others in the difficulties they are facing." Three items had <61% agreement and Poor PABAK: "I feel a sense of harmony within myself," "My illness has strengthened my faith or spiritual beliefs," "I feel connected to a higher power (or God)." Dyadic congruence was compared by social-demographics using median one-way analysis. Male family members (median = 72%) were less likely to share spiritual beliefs with their adolescent than female family members (median = 83%), P = .0194.

conclusionsFamily members may not share spiritual beliefs with adolescents and may be unaware of the importance of spiritual well-being for adolescents.

Indexed as

Adolescent BehaviorDecision MakingReligion and MedicineSpiritualityAdolescentAdultAdvance Care PlanningCross-Sectional StudiesFamilyFemaleFollow-Up StudiesHumansLongitudinal StudiesMaleNeoplasmsPrognosisadolescentscancercongruencefamilyquality of lifespirituality

Identifiers

PMID32918519
PMCPMC7699821
OpenAlexW3085115152

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.