ArticleJournal of clinical nursing2022
Involuntary treatment in dementia care at home: Results from the Netherlands and Belgium.
Article in Journal of clinical nursing, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
11 citing papers in PubMed, 1 synthesis or guideline pooled it, 21 citations in OpenAlex.
- Supporting safe walking and managing missing incidents in dementia: a qualitative narrative synthesis of current evidence.Age and ageing · 2026Pooled it
- A systematic scoping review and interpretive ethical synthesis of ethical decision-making about physical restraints for older adults in Confucian-influenced care contexts.BMC medical ethics · 2026Article
- Living alone with dementia is a neglected source of inequality: findings from a scoping review of research evidence.Systematic reviews · 2025Article
- Article
- District nurses' experiences with involuntary treatment in dementia care at home: a qualitative descriptive study.BMC nursing · 2023Article
- Prevalence of falls, incontinence, malnutrition, pain, pressure injury and restraints in home care: A narrative review.Health & social care in the community · 2022Review
- A Quasi-experimental study on prevention and reduction of involuntary treatment at home (PRITAH) in people with dementia.Journal of clinical nursing · 2022Article
- Involuntary treatment in dementia care at home: Results from the Netherlands and Belgium.Journal of clinical nursing · 2022Article
- Autonomy conquers all: a thematic analysis of nurses' professional judgement encountering resistance to care from home-dwelling persons with dementia.BMC health services research · 2022Article
- Caregiver decision-making concerning involuntary treatment in dementia care at home.Nursing ethics · 2022Article
- Article
Corrections and comments
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Authors and funding
8 authors at 3 institutions in 5 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
AIMS AND
objectivesTo gain insight into the request, use and associated factors of involuntary treatment in people with dementia (PwD) receiving professional home care in the Netherlands and Belgium.
backgroundMost of the PwD remain living at home as long as possible. Due to complex care needs, this can result in an increased risk for care provided against the wishes of the client and/or to which the client resists, referred to as involuntary treatment.
designSecondary data analyses of two cross-sectional surveys.
methodsDementia case managers and district nurses filled in a questionnaire for each PwD in their caseload. This study included data of 627 PwD receiving professional home care in the Netherlands and 217 in Belgium. The same methodology (questionnaire and variables) was used in both samples. Descriptive statistics and multi-level logistic regression analyses were used to analyse the data. The study adhered to the STROBE checklist.
resultsMore than half of the PwD (50.7%) living at home received involuntary treatment (Belgium 68.2% and the Netherlands 44.7%). Nonconsensual care (82.7%) was the most common, followed by psychotropic medication (40.7%) and physical restraints (18.5%). Involuntary treatment use was associated with living alone, greater ADL dependency, lower cognitive ability, higher family caregiver burden and receiving home care in Belgium versus the Netherlands. Involuntary treatment was most often requested by family caregivers.
conclusionsInvoluntary treatment is often used in PwD, which is in line with previous findings indicating dementia as a risk factor for involuntary treatment use. More research is needed to gain insight into variations in prevalence across other countries, which factors influence these differences and what countries can learn from each other regarding prevention of involuntary treatment. RELEVANCE TO CLINICAL PRACTICE: To provide person-centred care, it is important to study ways to prevent involuntary treatment in PwD and to stimulate dialogue between professional and family caregivers for alternative interventions.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.