Evidence map›Paper›PMID 32898285›Full record

ArticleJournal of the American Geriatrics Society2021

Older Adults without Desired Surrogates in a Nationally Representative Sample.

Andrew B Cohen, Darcé M Costello, John R OʼLeary, Terri R Fried

Abstract read
In one paragraph

Article in Journal of the American Geriatrics Society, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. "I worry about this patient EVERY day": Geriatrics Clinicians' Challenges in Caring for Unrepresented Older Adults.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2022
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Andrew B CohenDepartment of Medicine, Yale School of Medicine, New Haven, Connecticut, USA.ORCID 0000-0001-9161-8436
Darcé M CostelloDepartment of Medicine, Yale School of Medicine, New Haven, Connecticut, USA.
John R OʼLearyDepartment of Medicine, Yale School of Medicine, New Haven, Connecticut, USA.
Terri R FriedDepartment of Medicine, Yale School of Medicine, New Haven, Connecticut, USA.ORCID 0000-0001-8083-8265

Funding

Yale Clinical and Translational Science Award (U Component)UL1TR001863 · NCATS · YALE UNIVERSITY · PI John H. Krystal, LUCILA OHNO-MACHADO · 2016 to 2026
$102.9M
Yale Study Support Suite (YES3): Dashboard and Web Portal Software Supporting Research Workflow through integrated, customizable REDCap External ModulesP30AG021342 · NIA · YALE UNIVERSITY · PI Albert C Shaw · 2002 to 2026
$37.9M
Enhancing Engagement in Advance Care PlanningR01NR016007 · NINR · YALE UNIVERSITY · PI FRIED, TERRI R. · 2016 to 2019
$2.6M
Dementia and Decision-Making for Older Adults without SurrogatesK76AG059987 · NIA · YALE UNIVERSITY · PI COHEN, ANDREW B · 2018 to 2022
$1.2M
NCATS NIH HHS UL1 TR001863NIA NIH HHS K76 AG059987NIA NIH HHS K76AG059987NIA NIH HHS P30 AG021342NIA NIH HHS P30AG21342NINR NIH HHS R01 NR016007
6 · The paper itself

Abstract

BACKGROUND/

objectivesLittle is known about older adults who have intact capacity but do not have a desired surrogate to make decisions if their capacity becomes impaired.

designCross-sectional study of a nationally representative sample.

settingNational Social Life, Health, and Aging Project (NSHAP), 2005-2006.

participantsCommunity-dwelling older adults without known cognitive impairment, aged 57 to 85, interviewed as part of NSHAP (n = 2,767). MEASUREMENTS: We examined demographic, medical, and social connectedness characteristics associated with answering "no" to this question: "Do you have someone who you would like to make medical decisions for you if you were unable, as for example if you were seriously injured or very sick?" Because many states permit nuclear family to make decisions for persons with no legally appointed health care agent, we used logistic regression to identify factors associated with individuals who were ill suited to this paradigm in the sense that they had nuclear family but did not have a desired surrogate.

resultsAmong NSHAP respondents, 7.5% (95% confidence interval = 6.4-8.7) did not have a desired surrogate. Nearly 90% of respondents without desired surrogates had nuclear family. Compared with respondents with desired surrogates, those without desired surrogates had lower indicators of social connectedness. On average, however, they had four confidants, approximately 70% socialized at least monthly, and more than 90% could discuss their health with a confidant. Among respondents who had nuclear family, few characteristics distinguished those with and without desired surrogates.

conclusionNearly 8% of older adults did not have a desired surrogate. Most had nuclear family and were not socially disconnected. Older adults should be asked explicitly about a desired surrogate, and strategies are needed to identify surrogates for those who do not have family or would not choose family to make decisions for them.

Indexed as

AgingDecision MakingAdvance DirectivesAgedAged, 80 and overCross-Sectional StudiesFamilyFemaleHumansIndependent LivingMaleMiddle AgedSocial InteractionUnited Statesincapacitated patientssurrogate decision-makingunbefriended

Identifiers

PMID32898285
PMCPMC7854949

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.