ArticleJournal of pediatric psychology2020
Predictors of Distinct Trajectories of Medical Responsibility in Youth with Spina Bifida.
Article in Journal of pediatric psychology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
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Who cites it
16 citing papers in PubMed.
- The concerns of mothers of female youth with physical disabilities in transitioning to adulthood: A qualitative study.Journal of pediatric rehabilitation medicine · 2026Article
- The transition from pediatric to adult healthcare in spina bifida: an interview-based measure.Journal of pediatric psychology · 2026Article
- Self-management in youth with spina bifida: predictors of health and quality of life outcomes.Disability and rehabilitation · 2026Article
- Neuropsychological predictors of growth in condition-related self-management skill mastery in youth with spina bifida.Journal of pediatric psychology · 2025Article
- The daily phone diary in adolescents and young adults with spina bifida: utility and psychometric evidence.Journal of pediatric psychology · 2025Article
- Contextual predictors of self-management and independence trajectories in adolescents and young adults with spina bifida.Developmental medicine and child neurology · 2024Article
- Trajectories of self-management and independence in youth with spina bifida: Family-related predictors of growth.Research in nursing & health · 2024Article
- Growth of condition-related knowledge among youth with spina bifida: associations with neurocognitive functioning and self-management skills.Journal of pediatric psychology · 2024Article
- Perceived barriers transitioning to adult healthcare among adults with spina bifida.Health care transitions · 2024Article
- Factors affecting the transition to adulthood of Korean young adults with spina bifida: a qualitative study.BMC nursing · 2023Article
- Longitudinal Trajectories of Clean Intermittent Catheterization Responsibility in Youths with Spina Bifida.The Journal of urology · 2022Article
- Medical responsibility growth in youth with spina bifida: Neuropsychological and parenting predictors.Health psychology : official journal of the Division of Health Psychology, American Psychological Association · 2021Article
- Cross-Lag Model of Medical Responsibility and Skills in Youth With Spina Bifida.Journal of pediatric psychology · 2021Article
- Assessment of Health Literacy and Self-reported Readiness for Transition to Adult Care Among Adolescents and Young Adults With Spina Bifida.JAMA network open · 2021Article
- Factor Structure of Medical Autonomy Scales in Young People with Spina Bifida.Journal of pediatric psychology · 2021Article
- The Transition to Adult Health Care in Youth With Spina Bifida: Theory, Measurement, and Interventions.Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing · 2021Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
objectiveTo determine if there are distinct developmental trajectories of medical responsibility in youth with spina bifida (SB) across ages 8-17 years and to identify condition-related, parental, and family systems predictors of membership in these trajectory groups.
methodsParticipants were 140 youth with SB and their parents who participated in four waves of a longitudinal study across 6 years (ages 8-15 years at Time 1). Multi-method (questionnaires and observed family interactions) and multi-respondent assessments were conducted during home visits.
resultsFindings revealed that there were two distinct developmental trajectories that characterized this sample, with one being labeled "high increasing" (two thirds of the sample) and one labeled "low increasing" (one third of the sample). Most predictor variables were significantly associated with trajectory group membership, with the exception of ethnicity, SES, and measures of conflict. When all significant univariate predictors were included in the same model, only intelligence quotient (IQ), family stress, and gender were retained as significant.
conclusionsMost youth exhibited relatively rapid increases in responsibility over the course of late childhood and adolescence, but there was a smaller portion of the sample that did not exhibit this type of developmental trajectory. The magnitude of the IQ effect on group differentiation appeared to attenuate the effects of most other predictors. It will be important for clinicians working with youth with SB to recognize that the transfer of medical responsibility from parent to child cannot be expected to unfold in the same manner for all families of youth with SB.
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