ArticleThe Journal of pediatrics2021
Disability, Hospital Care, and Cost: Utilization of Emergency and Inpatient Care by a Cohort of Children with Intellectual and Developmental Disabilities.
Article in The Journal of pediatrics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed.
- Improving the Safety and Quality of Care for Children and Young People With Intellectual and Developmental Disability. The Motivated for Change Programme in a Paediatric Emergency Department Setting. A Mixed Methods Study.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Pre-pandemic and pandemic healthcare utilisation among children with intellectual disabilities compared to the general population: a register study (IDcare).BMJ paediatrics open · 2026Article
- Co-Producing a Patient Reported Experience Measure (PREM) With and for People With Intellectual Disability.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Fostering inclusion in clinical and research procedures in autistic youth through augmentative and alternative communication: a narrative review and a proposal for visual aids application in brain stimulation.Frontiers in psychiatry · 2026Review
- Parents' Experiences and Information Needs in the Management of Their Child With Intellectual Developmental Disorders in Canadian Emergency Departments: A Qualitative Descriptive Study.Journal of patient experience · 2026Article
- Associations Between Nurse Staffing Levels and 30- and 60-Day Readmissions for Acute Care Patients With Intellectual and Developmental Disability.Research in nursing & health · 2025Article
- Association of Nurse Work Environment, Staffing, and Skill Mix With Length of Stay for Patients With Intellectual and Developmental Disabilities.Medical care · 2025Article
- Article
- Caring by default: experiences of caregivers of children with developmental disabilities in Ghana mirrored in the context of the stress process model.BMC nursing · 2024Article
- The interaction between social determinants of health, health behaviors, and child's intellectual developmental diagnosis.medRxiv : the preprint server for health sciences · 2024Article
- Article
- Health care transition quadruple aim outcomes for IDD: Scoping review.Health care transitions · 2024Article
- Seeking Care for Children with Intellectual and/or Developmental Disabilities in the Emergency Department: A Mixed Methods Systematic Review of Parents' Experiences and Information Needs.Open access emergency medicine : OAEM · 2024Review
- Psychoeducational Profile-Revised, Korean Wechsler Preschool and Primary Scale of Intelligence, Fourth Edition, and the Vineland Adaptive Behavior Scale, Second Edition: Comparison of Utility for Developmental Disabilities in Preschool Children.Journal of the Korean Academy of Child and Adolescent Psychiatry · 2023Article
- Medicaid Enrollment and Service Use Among Adults With Down Syndrome.JAMA health forum · 2023Article
- Utilization and Staff Perspectives on an On-Demand Telemedicine Model for People with Intellectual and Developmental Disabilities Who Reside in Certified Group Residences.Telemedicine reports · 2023Article
- Policy brief: adaptive cycling equipment for individuals with neurodevelopmental disabilities as durable medical equipment.Frontiers in rehabilitation sciences · 2023Article
- Challenges to Telehealth: What Was Learned from Families of Children with Neurodevelopmental Disorders.The Nursing clinics of North America · 2022Review
- Article
- Whole-Exome Sequencing for Identifying Genetic Causes of Intellectual Developmental Disorders.International journal of general medicine · 2021Article
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
objectiveTo use medical claims data to determine patterns of healthcare utilization in children with intellectual and developmental disabilities, including frequency of service utilization, conditions that require hospital care, and costs. STUDY
designMedicaid administrative claims from 4 states (Iowa, Massachusetts, New York, and South Carolina) from years 2008-2013 were analyzed, including 108 789 children (75 417 male; 33 372 female) under age 18 years with intellectual and developmental disabilities. Diagnoses included cerebral palsy, autism, fetal alcohol syndrome, Down syndrome/trisomy/autosomal deletions, other genetic conditions, and intellectual disability. Utilization of emergency department (ED) and inpatient hospital services were analyzed for 2012.
resultsChildren with intellectual and developmental disabilities used both inpatient and ED care at 1.8 times that of the general population. Epilepsy/convulsions was the most frequent reason for hospitalization at 20 times the relative risk of the general population. Other frequent diagnoses requiring hospitalization were mood disorders, pneumonia, paralysis, and asthma. Annual per capita expenses for hospitalization and ED care were 100% higher for children with intellectual and developmental disabilities, compared with the general population ($153 348 562 and $76 654 361, respectively).
conclusionsChildren with intellectual and developmental disabilities utilize significantly more ED and inpatient care than other children, which results in higher annual costs. Recognizing chronic conditions that increase risk for hospital care can provide guidance for developing outpatient care strategies that anticipate common clinical problems in intellectual and developmental disabilities and ensure responsive management before hospital care is needed.
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