ArticleJournal of clinical nursing2020
Liver cirrhosis turns life into an unpredictable roller coaster: A qualitative interview study.
Article in Journal of clinical nursing, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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Who cites it
14 citing papers in PubMed, 29 citations in OpenAlex.
- Health-related quality of life in patients with liver cirrhosis following adjunctive nurse-based care versus standard medical care: a pragmatic, multicentre, randomised controlled study.BMJ open gastroenterology · 2025Trial
- A randomized controlled trial of a postdischarge nursing intervention for patients with decompensated cirrhosis.Hepatology communications · 2024Trial
- Becoming a Different Person: Living with Hepatic Encephalopathy as a Condition in Everyday Life-A Qualitative Explorative Study.Healthcare (Basel, Switzerland) · 2026Article
- Latent class analysis of dyadic psychosocial adaptation in young and middle-aged couples with liver cirrhosis.Frontiers in psychology · 2026Article
- Factors Influencing the Prognostic Assessment of Patients with End-Stage Alcohol-Associated Liver Disease before Liver Transplantation.European addiction research · 2026Article
- Multidimensional experience of pain in adults with cirrhosis: A qualitative descriptive study.Canadian journal of pain = Revue canadienne de la douleur · 2025Article
- Predictive factors for limited health literacy among persons with cirrhosis: A Swedish explorative cross-sectional study.PloS one · 2025Article
- Patient perceived quality of cirrhosis care- adjunctive nurse-based care versus standard medical care: a pragmatic multicentre randomised controlled study.BMC nursing · 2024Article
- Collaborating with patients and caregivers to create web-based educational resources for people affected by cirrhosis.PEC innovation · 2023Article
- Knowledge needs in patients with Liver Disease: a qualitative study.BMC nursing · 2023Article
- Feeling safe or falling through the cracks-Patients' experiences of healthcare in cirrhosis illness: A qualitative study.PloS one · 2023Article
- The Main Thing is to be Alive-Exploring Patients' Experiences With Weight Gain After Liver Transplantation: A Qualitative Study.Transplant international : official journal of the European Society for Organ Transplantation · 2022Article
- Liver cirrhosis turns life into an unpredictable roller coaster: A qualitative interview study.Journal of clinical nursing · 2020Article
- Exploring Patients' Experiences of Living With Liver Cirrhosis-Related Ascites and Receiving Follow-Up Care in Nurse-Led Outpatient Clinics.Global qualitative nursing researchArticle
Corrections and comments
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Authors and funding
5 authors at 3 institutions in 1 country.
Funding
Abstract
aimTo explore how persons living with liver cirrhosis experience day-to-day life.
backgroundLiver cirrhosis is the sixth most common cause of death among adults in Western countries. Persons with advanced liver cirrhosis report poor quality of life, in comparison with other chronic diseases. However, knowledge regarding day-to-day life during earlier stages of the disease is lacking. In other chronic diseases, the suffering process is well explored, while in liver cirrhosis, suffering is insufficiently investigated.
designAn exploratory study, with a qualitative inductive interview approach.
methodsA purposive maximum variation sample of 20 informants with liver cirrhosis aged 25-71, from two gastroenterology outpatient clinics in mid-Sweden, were interviewed from September 2016 to October 2017. Interview data were analysed inductively with qualitative content analysis. Reporting followed the COREQ guidelines.
resultsThe experiences of day-to-day life living with liver cirrhosis comprised four sub-themes. Living with liver cirrhosis implied varying levels of deterioration, the most apparent being exhaustion or tiredness. The informants had to find ways of adapting to a new life situation. The insecurity of future health evoked existential reflections such as feeling emotionally and existentially distressed. Shame and guilt were reasons for feeling stigmatised. These sub-themes emerged into one overarching theme of meaning: life turns into an unpredictable roller coaster. This is based on experiences of liver cirrhosis as an unpredictable disease with fluctuating symptoms, worries and disease progression.
conclusionLiving with cirrhosis implies an unpredictable condition with a progressive, stigmatising disease. The fluctuating symptoms and deep concerns about future life pose an increased personal suffering. RELEVANCE TO CLINICAL PRACTICE: Within health care, knowledge of the person's experience is vital to enable and fulfil the person's healthcare needs. Clinical registered nurses need a person-centred approach to strengthen their patients to cope with their new life situation.
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