ArticleInternational journal of integrated care2020
What Do Parents Expect in the 21st Century? A Qualitative Analysis of Integrated Youth Care.
Article in International journal of integrated care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 15 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it, 28 citations in OpenAlex.
- Commonality of 25 component themes of integrated care for children: rapid review of 170 models.BMC health services research · 2025Pooled it
- Article
- Transitioning from child and adolescent psychiatry to follow-up care: a concept mapping study.European child & adolescent psychiatry · 2026Article
- Professionals' and Families' Perspectives on Essential Elements of Shared Decision-Making: A Qualitative Analysis on Families with Multiple and Enduring Problems in Integrated Youth Care.Administration and policy in mental health · 2025Article
- Effectiveness of a multidisciplinary treatment with youth-initiated mentoring for youths with mental health needs from multi-problem families: a quasi-experimental study.BMC public health · 2024Article
- When opinions differ: the development of a reflection tool for youth professionals to support shared decision-making with parents.European journal of social work · 2023Article
- Organisation, influence, and impact of patient advisory boards in rehabilitation institutions-an explorative cross-sectional study.BMC musculoskeletal disorders · 2022Article
- Parents' perspectives on user participation and shared decision-making in adolescents' inpatient mental healthcare.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Don't Forget the Caregivers! A Discrete Choice Experiment Examining Caregiver Views of Integrated Youth Services.The patient · 2021Article
- Managing type 1 diabetes during the COVID-19 pandemic is a team effort: a qualitative study of the experiences of young people and their parents.Integrated healthcare journal · 2021Article
- Understanding Young People and Their Care Providers' Perceptions and Experiences of Integrated Care Within a Tertiary Paediatric Hospital Setting, Using Interpretive Phenomenological Analysis.International journal of integrated care · 2020Article
- Correction: What Do Parents Expect in the 21st Century? A Qualitative Analysis of Integrated Youth Care.International journal of integrated care · 2020Article
- A Balancing Act: Partnership Dynamics in Practice When Organising and Developing Integrated Care Initiatives.International journal of integrated careArticle
- Facilitators and Barriers in Integrated Social Care for Families Facing Multiple and Complex Problems: A Scoping Review.International journal of integrated careArticle
- Integrated Youth Service Preferences of Caregivers of Justice-Involved Youth: A Discrete Choice Conjoint Experiment.International journal of integrated careArticle
Corrections and comments
- Erratum issued
Authors and funding
6 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionTo provide integrated Youth Care responsive to the needs of families with multiple problems across life domains, it is essential to incorporate parental perspectives into clinical practice. The aim of this study is to advance our understanding of key components of integrated Youth Care from a parental perspective.
methodsSemi-structured interviews were administered to 21 parents of children receiving Youth Care from integrated care teams in the Netherlands. Qualitative content analysis was conducted by means of a grounded theory approach following qualitative reporting guidelines. RESULTS AND DISCUSSION: Parental perspectives were clustered into six key components: a holistic, family-centred approach; addressing a broad range of needs in a timely manner; shared decision making; interprofessional collaboration; referral; and privacy. Parents emphasized the importance of a tailored, family-centred approach, addressing needs across several life domains, and active participation in their own care process. However, they simultaneously had somewhat opposing expectations regarding these key components, for example, concerning the changing roles of professionals and parents in shared decision making and the value of involving family members in a care process. Professionals should be aware of these opposing expectations by explicitly discussing mutual expectations and changing roles in decision making during a care process. To enable parents to make their own decisions, professionals should transparently propose different options for support guided by an up-to-date care plan.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.