ArticleJournal of clinical medicine2020
Structured Care and Self-Management Education for Persons with Parkinson's Disease: Why the First Does Not Go without the Second-Systematic Review, Experiences and Implementation Concepts from Sweden and Germany.
Article in Journal of clinical medicine, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
19 citing papers in PubMed.
- Digital Intervention Promoting Physical Activity in People Newly Diagnosed with Parkinson's Disease: Feasibility and Acceptability of the Knowledge, Exercise-Efficacy and Participation (KEEP) Intervention.Journal of Parkinson's disease · 2024Trial
- Patient activation among patients with Parkinsonism and informal caregivers: results from the PRIME-UK cross-sectional study.European geriatric medicine · 2026Article
- Prevention of cognitive impairment and dementia in people with Parkinson's disease: A call-to-action.Journal of Parkinson's disease · 2025Review
- Empowering People with Parkinson's: Reframing Self-Management in Parkinson's-A Critical Reflection of Current Practice.Healthcare (Basel, Switzerland) · 2025Article
- Exploring deep brain stimulation willingness in Black individuals with Parkinson's disease.Equity neuroscience · 2025Article
- Article
- The feasibility of a self-regulation and mental imagery programme to enhance everyday functioning for people with Parkinson's disease: study protocol.Pilot and feasibility studies · 2024Article
- Multidisciplinary care in Parkinson's disease.Journal of neural transmission (Vienna, Austria : 1996) · 2024Article
- "Exercise… to Me, It's Freedom": Motivation, Support, and Self-Management to Keep Physically Active with Parkinson's Disease: A Qualitative Study.Geriatrics (Basel, Switzerland) · 2024Article
- Article
- [How the implementation of a school for people with Parkinson's disease can succeed-Results of a consensus study and a formative evaluation].Der Nervenarzt · 2024Article
- A systematic review of Behaviour Change Interventions to improve exercise self-efficacy and adherence in people with Parkinson's disease using the Theoretical Domains Framework.Journal of frailty, sarcopenia and falls · 2024Review
- Article
- [Treatment practice of patients with Parkinson's disease in Saxony : A secondary data-based analysis of utilization in the observation period 2011-2019].Der Nervenarzt · 2022Article
- Disease modification in Parkinsonism: obstacles and ways forward.Journal of neural transmission (Vienna, Austria : 1996) · 2022Review
- Can behavioural change interventions improve self-efficacy and exercise adherence among people with Parkinson's? A systematic review protocol.HRB open research · 2022Article
- Moving towards Integrated and Personalized Care in Parkinson's Disease: A Framework Proposal for Training Parkinson Nurses.Journal of personalized medicine · 2021Review
- Covid Proof Self-Management Training for Caregivers of Patients with Parkinson's Disease.Movement disorders : official journal of the Movement Disorder Society · 2021Article
- Promoting Self-Care in Nursing Encounters with Persons Affected by Long-Term Conditions-A Proposed Model to Guide Clinical Care.International journal of environmental research and public health · 2021Article
Corrections and comments
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Authors and funding
11 authors.
Funding
Abstract
Integrated care is regarded as a key for care delivery to persons with chronic long-term conditions such as Parkinson's disease. For persons with Parkinson's disease, obtaining self-management support is a top priority in the context of integrated care. Self-management is regarded as a crucial competence in chronic diseases since the affected persons and their caregivers inevitably take up the main responsibility when it comes to day-to-day management. Formal self-management education programs with the focus on behavioral skills relevant to the induction and maintenance of behavioral change have been implemented as a standard in many chronic long-term conditions. However, besides the example of the Swedish National Parkinson School, the offers for persons with Parkinson's disease remain fragmented and limited in availability. Today, no such program is implemented as a nationwide standard in Germany. This paper provides (1) a systematic review on structured self-management education programs specifically designed or adopted for persons with Parkinson's disease, (2) presents the Swedish National Parkinson School as an example for a successfully implemented nationwide program and (3) presents a concept for the design, evaluation and long-term implementation of a future-orientated self-management education program for persons with Parkinson's disease in Germany.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.