ArticleSocial science & medicine (1982)2020
Waiting for care: Chronic illness and health system uncertainties in the United States.
Article in Social science & medicine (1982), 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed.
- Access Improvement in Healthcare: Be Quick, but Don't Hurry?Learning health systems · 2026Article
- Trends in respiratory failure mortality in the United States from 1999 to 2023.Frontiers in medicine · 2026Article
- Navigating Uncertainty: Family Experiences and Coping Strategies During Critical Care Hospitalisation: A Descriptive Qualitative Study.Nursing in critical care · 2025Article
- Assessing unmet need for dental care from the perspective of adults with disabilities: A mixed methods approach.Disability and health journal · 2025Article
- Where there are no visitors: Improvising care in a pediatric hospital in Zambia.Social science & medicine (1982) · 2025Article
- Essential Advance Care Planning Intervention Features in Low-Income Communities: A Qualitative Study.Journal of pain and symptom management · 2025Article
- Access to Healthcare for Appendicitis Patients in the United States Based on Insurance Coverage.Cureus · 2024Article
- Knowledge, attitudes, and perceptions of residents towards Hospital-at-Home (HaH) and its role in residency training.BMC medical education · 2024Article
- Life-Stage and Contextual Factors of Advance Care Planning Among Older Adults With Limited Income.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2024Article
- Impact of Insurance Type on Access to Pediatric Surgical Care.Plastic and reconstructive surgery. Global open · 2024Article
- Discovering risk patterns in people with affective disorder-induced disabilities associated with their healthcare delay.International health · 2023Article
- Preferences and willingness-to-pay for a blood pressure telemonitoring program using a discrete choice experiment.NPJ digital medicine · 2023Article
- Structural Factors and Racial/Ethnic Inequities in Travel Times to Acute Care Hospitals in the Rural US South, 2007-2018.The Milbank quarterly · 2023Article
- Disruptions in Sexual and Reproductive Health Care Service Delivery for Immigrants During COVID-19.Women's health reports (New Rochelle, N.Y.) · 2023Article
- Assessing social needs among patients with cardiovascular and psychiatric comorbidities in free community health clinics.PloS one · 2023Article
- Taking time: The temporal politics of dementia, care and support in the neighbourhood.Sociology of health & illness · 2022Article
- Thinking Time, Shifting Goalposts and Ticking Time Bombs: Experiences of Waiting on the Gender Identity Development Service Waiting List.International journal of environmental research and public health · 2022Article
- Delay of routine health care during the COVID-19 pandemic: A theoretical model of individuals' risk assessment and decision making.Social science & medicine (1982) · 2022Article
- The Impact of the COVID-19 Pandemic on Self-Reported Management of Chronic Conditions.Journal of patient experience · 2021Article
- Psychological Resilience and Coping Among Women Living With Chronic Hypertension in Rural Uganda.Inquiry : a journal of medical care organization, provision and financingArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
Structures of power and inequality shape day-to-day life for individuals who are poor, imposing waiting in multiple forms and for a variety of services, including for healthcare (Andaya, 2018a; Auyero, 2012; Strathmann and Hay, 2009). Constraints, such as the age requirements for Medicare, losing employer-provided health insurance, or the bureaucracy involved in filing for disability often require people to wait to follow recommendations for medical treatments. In 2016-2017, we conducted 52 narrative interviews in St. Louis, a city with significant racial and economic health inequities and without Medicaid expansion. We interviewed people with one or more chronic illnesses for which they were prescribed medication and who identified as having difficulties affording their prescriptions. Throughout the interviews, participants frequently recounted 1) experiences of waiting for care, along with other services, and 2) the range of strategies they utilized to manage the waiting. In this article, we develop the concept of active waiting to describe both the lived experiences of waiting for care and the responses that people devise to navigate, shorten, or otherwise endure waiting. Waiting is structured into healthcare and other social services at various scales in ways that reinforce feelings of marginalization, and also that require work on the part of those who wait. While much medical and public health research focuses on issues of diagnostic or treatment delay, we conclude that this conceptualization of active waiting provides a far more productive frame for accurately understanding the emotional and physical experiences of individuals who are disproportionately poor and made to wait for their care. Only with such understanding can we hope to build more just and compassionate social systems.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.