ArticleJournal of cancer survivorship : research and practice2021
A core set of patient-reported outcomes for population-based cancer survivorship research: a consensus study.
Article in Journal of cancer survivorship : research and practice, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
24 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Using Integrative Therapies to Improve Patient-Reported Outcomes in Breast Cancer Survivors: A Living Evidence-Based Clinical Practice Guideline.Journal of evidence-based medicine · 2025Guideline
- Machine learning models including patient-reported outcome data in oncology: a systematic literature review and analysis of their reporting quality.Journal of patient-reported outcomes · 2024Pooled it
- The Effect of Life Coaching on Post-Traumatic Growth and Well-Being in Breast Cancer Survivors: A Randomized Controlled Trial.Psycho-oncology · 2025Trial
- Factors influencing the impact of financial toxicity on the quality of life of breast cancer patients after mastectomies.BMC cancer · 2026Article
- Presenting the Brazilian physical activity during cancer treatment guidelines: adaptations and challenges in a low- and middle-income context.BMC cancer · 2026Article
- Article
- Establishing the Ecological Validity of Cognitive Patient Reported Outcome Measures in Breast Cancer Survivors: A Prospective Cohort Study.Psycho-oncology · 2025Article
- Article
- Treatment Modalities for Aromatase Inhibitor-Associated Musculoskeletal Syndrome (AIMSS): A Scoping Review of Prospective Treatment Studies.Journal of pain research · 2025Review
- [Patient-reported outcomes-the role of the patient's subjective perspective for research and clinical care].Urologie (Heidelberg, Germany) · 2024Review
- Article
- The PhenX Toolkit: standard measurement resources for cancer outcomes and survivorship research.Journal of the National Cancer Institute · 2023Article
- International development of a patient-centered core outcome set for assessing health-related quality of life in metastatic breast cancer patients.Breast cancer research and treatment · 2023Article
- Perceived COVID-19 pandemic impact and protective factors predicting patient-reported depression and anxiety in individuals living with cancer.Journal of patient-reported outcomes · 2023Article
- Trajectories of participation in daily life among individuals newly diagnosed with cancer: A 5-month longitudinal study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Surveillance of Symptom Burden Using the Patient-Reported Outcome Version of the Common Terminology Criteria for Adverse Events in Patients With Various Types of Cancers During Chemoradiation Therapy: Real-World Study.JMIR public health and surveillance · 2023Article
- Effectiveness and implementation of models of cancer survivorship care: an overview of systematic reviews.Journal of cancer survivorship : research and practice · 2023Review
- Review
- A Narrative Review on the Collection and Use of Electronic Patient-Reported Outcomes in Cancer Survivorship Care with Emphasis on Symptom Monitoring.Current oncology (Toronto, Ont.) · 2022Review
- Anticipating mental health needs after chemotherapy in early-stage breast cancer using patient-reported symptom screening.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeCore outcome sets aim to improve the consistency and quality of research by providing agreed-upon recommendations regarding what outcomes should be measured as a minimum for a population and setting. This study aimed to identify a core set of patient-reported outcomes (PROs) representing the most important issues impacting on cancer survivors' long-term health, functioning, and quality of life, to inform population-based research on cancer survivorship.
methodsIn phase I, a list of 46 outcomes was generated through focus groups (n = 5) with cancer survivors (n = 40) and a review of instruments for assessing quality of life in cancer survivorship. In phase II, 69 national experts in cancer survivorship practice, research, policy, and lived experience participated in a two-round Delphi survey to refine and prioritise the listed outcomes into a core outcome set. A consensus meeting was held with a sub-sample of participants to discuss and finalise the included outcomes.
resultsTwelve outcome domains were agreed upon for inclusion in the core outcome set: depression, anxiety, pain, fatigue, cognitive problems, fear of cancer recurrence or progression, functioning in everyday activities and roles, financial toxicity, coping with cancer, overall bother from side effects, overall quality of life, and overall health status.
conclusionsWe established a core set of PROs to standardise assessment of cancer survivorship concerns at a population level. IMPLICATIONS FOR CANCER SURVIVORS: Adoption of the core outcome set will ensure that survivorship outcomes considered important by cancer survivors are assessed as a minimum in future studies. Furthermore, its routine use will optimise the comparability, quality, and usefulness of the data cancer survivors provide in population-based research.
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