Evidence map›Paper›PMID 32847495›Full record

ArticleBMC geriatrics2020

Care of family caregivers of persons with dementia (CaFCa) through a tailor-made mobile app: study protocol of a complex intervention study.

Zarina Nahar Kabir, Angela Yee Man Leung, Åke Grundberg, Anne-Marie Boström, Kristina Lämås, Ana Paula Kallström, Cecilia Moberg, Berit Seiger Cronfalk, Sebastiaan Meijer, Hanne Konradsen

Abstract read
In one paragraph

Article in BMC geriatrics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
18citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

18 citing papers in PubMed, 2 syntheses or guidelines pooled it.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Zarina Nahar KabirDivision of Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institute, Alfred Nobels Allé 23, 141 83 Huddinge, Stockholm, Sweden. zarina.kabir@ki.se.ORCID 0000-0003-0465-5701
Angela Yee Man LeungCentre for Gerontological Nursing, School of Nursing, The Hong Kong Polytechnic University, Hong Kong, Hong Kong.
Åke GrundbergDivision of Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institute, Alfred Nobels Allé 23, 141 83 Huddinge, Stockholm, Sweden.
Anne-Marie BoströmDivision of Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institute, Alfred Nobels Allé 23, 141 83 Huddinge, Stockholm, Sweden.
Kristina LämåsDepartment of Nursing, Umeå University, Umeå, Sweden.
Ana Paula KallströmDivision of Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institute, Alfred Nobels Allé 23, 141 83 Huddinge, Stockholm, Sweden.
Cecilia MobergDivision of Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institute, Alfred Nobels Allé 23, 141 83 Huddinge, Stockholm, Sweden.
Berit Seiger CronfalkDivision of Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institute, Alfred Nobels Allé 23, 141 83 Huddinge, Stockholm, Sweden.
Sebastiaan MeijerRoyal Institute of Technology, Stockholm, Sweden.
Hanne KonradsenDivision of Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institute, Alfred Nobels Allé 23, 141 83 Huddinge, Stockholm, Sweden.

Funding

Familjen Kamprads Stiftelse 20180087Strategic Research Area Health Care Science 2-2764/2018Strategic Research Area in Health Care Science 2-2764/207
6 · The paper itself

Abstract

backgroundGlobally, family members account for the main source of caregiving of persons with dementia living at home. Providing care to family members with dementia often has negative health consequences for caregivers such as stress, depression and low quality of life. Yet, formal support for family caregivers (FCs) is limited. Telehealth technology has the potential to provide health care and social support to FCs. This study aims to assess the effectiveness of providing support by healthcare professionals (HPs) through a mobile app in reducing stress, depressive symptoms and loneliness, and improving mental health and quality of life of FCs of persons with dementia.

methodsUsing a pragmatic intervention design, this study will use pre- and post-intervention assessment to evaluate the effectiveness of the proposed intervention in a sample of 78 FCs of persons with dementia (PWD). The intervention will be implemented by approximately 5 HPs specialized in dementia care based in the municipalities in Sweden. The main thrust of the intervention is to provide professional support, with help of an interactive mobile app, to family members in their caregiving role for PWDs. Qualitative interviews with HPs and FCs form the groundwork of the development of the mobile app. By using the app on smart phone or tablet, the FC, in groups of 8-10, will communicate with peers and a HP exchanging ideas on how to deal with PWD's behavioral and cognitive changes and get support. They will also be able to discuss stressful events and access mindfulness exercises focused on themselves. Quantitative data will be collected before and at three time points after the 8-week intervention to assess changes in the health outcomes of the FCs. In-depth interviews will be conducted after the intervention to capture the experiences of FCs and HPs regarding the ease of use and acceptability of the app. DISCUSSION: This tailor-made mobile app has the high potential to be a practical platform for supporting FCs to alleviate stress and improve mental health irrespective of distance to the nearest health care or social service center.

trial registrationISRCTN, ISRCTN46137262 . Registered 10 October 2019.

Indexed as

DementiaMobile ApplicationsCaregiversHumansQuality of LifeSwedenCaregiver stressCaregivingDepressive symptomsFamily caregiverLonelinessmHealthPerson with dementiaTelehealth

Identifiers

PMID32847495
PMCPMC7449058

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.