Evidence map›Paper›PMID 32847493›Full record

SynthesisBMC geriatrics2020

Determinants of overburdening among informal carers: a systematic review.

Nienke Lindt, Jantien van Berkel, Bob C Mulder

Abstract readSystematic Review
PubMed Full text at PMC Publisher
In one paragraph

Synthesis in BMC geriatrics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 152 papers, 6 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
152citing papers in PubMed, 6 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

152 citing papers in PubMed, 6 syntheses or guidelines pooled it.

  1. Pooled it
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  3. Informal caregiving for people with dementia and hearing or vision impairment: A systematic review.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025
    Pooled it
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  16. Health morbidities in carers with experience of domestic violence and abuse.Social psychiatry and psychiatric epidemiology · 2026
    Article
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  20. The validation of the CarerQol instrument and factors associated with quality of life among informal caregivers of disabled older adults in China.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article

92 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Nienke LindtStrategic Communication Group, Wageningen University, Hollandseweg 1, 6706, KN, Wageningen, The Netherlands.
Jantien van BerkelConsumption and Healthy Lifestyles, Wageningen University, Hollandseweg 1, 6706, KN, Wageningen, The Netherlands.
Bob C MulderStrategic Communication Group, Wageningen University, Hollandseweg 1, 6706 KN, P.O. Box 8130, 6700, EW, Wageningen, The Netherlands. bob.mulder@wur.nl.ORCID 0000-0003-0357-1370

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe world's population is ageing, resulting in rising care demands and healthcare costs, which in turn lead to a shift from formal to informal care. However, not only is the number of potential informal carers fast decreasing, but also informal caregivers are experiencing a higher caregiver burden. This literature review aims to synthesize the literature on the common determinants of caregiver burden in Western countries, to help ensure future continuation of informal care in the home context, and to improve or sustain the quality of life of caregivers and patients alike.

methodA systematic review of peer-reviewed articles included in PubMed, Scopus, and/or PsychInfo was conducted.

resultsSeventeen articles were included. The most important predictors were the duration of caregiving and the patient's dependency level, in terms of both physical and mental dependency stemming from decreased cognitive capacity or behavioural problems. Some specific illnesses and role conflicts or captivity also increased caregiver burden, whereas social support lowered it. Being a female caregiver or having an adult-child relationship led to a higher burden.

conclusionsThe most important predictors of caregiver burden are the duration of caregiving and the patient's dependency level. In addition, the patient's behavioural problems and cognitive capacity determine dependency level, and thus care burden. Interventions to relieve burden need to be adapted to the illness trajectory of specific diseases and corresponding needs for social support for both the recipient and the caregiver. Changing role expectations, leading to men being more involved, could reduce the disproportionately high burden for women.

Indexed as

CaregiversQuality of LifeCost of IllnessFemaleHealth Care CostsHumansMaleSocial SupportAdapted stress modelAntecedentsBurdenInformal careStress

Identifiers

PMID32847493
PMCPMC7448315

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.