ArticleLife sciences, society and policy2020
Just data? Solidarity and justice in data-driven medicine.
Article in Life sciences, society and policy, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Meaningful Human Control over AI for Health? A Review.Journal of medical ethics · 2026Pooled it
- The ethical aspects of human organ-on-chip models: A mapping review.Stem cell reports · 2025Review
- Big Data, Machine Learning, and Personalization in Health Systems: Ethical Issues and Emerging Trade-Offs.Science and engineering ethics · 2025Article
- Nanomaterials for bacterial enrichment and detection in healthcare.Nanomedicine (London, England) · 2025Review
- Artificial intelligence applications in the diagnosis and treatment of bacterial infections.Frontiers in microbiology · 2024Review
- 21st century (clinical) decision support in nursing and allied healthcare. Developing a learning health system: a reasoned design of a theoretical framework.BMC medical informatics and decision making · 2023Review
- How to Design Consent for Health Data Research? An Analysis of Arguments of Solidarity.Public health ethics · 2023Article
- Towards trust-based governance of health data research.Medicine, health care, and philosophy · 2023Article
- Lost in translation? Conceptions of privacy and independence in the technical development of AI-based AAL.Medicine, health care, and philosophy · 2023Article
- Drawbacks of Artificial Intelligence and Their Potential Solutions in the Healthcare Sector.Biomedical materials & devices (New York, N.Y.) · 2023Review
- Equity in AgeTech for Ageing Well in Technology-Driven Places: The Role of Social Determinants in Designing AI-based Assistive Technologies.Science and engineering ethics · 2022Article
- Data justice and data solidarity.Patterns (New York, N.Y.) · 2022Review
- How is "solidarity" understood in discussions about contact tracing apps? An overview.Frontiers in public health · 2022Review
- Ethical Implications of e-Health Applications in Early Preventive Healthcare.Frontiers in genetics · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
Abstract
This paper argues that data-driven medicine gives rise to a particular normative challenge. Against the backdrop of a distinction between the good and the right, harnessing personal health data towards the development and refinement of data-driven medicine is to be welcomed from the perspective of the good. Enacting solidarity drives progress in research and clinical practice. At the same time, such acts of sharing could-especially considering current developments in big data and artificial intelligence-compromise the right by leading to injustices and affecting concrete modes of individual self-determination. In order to address this potential tension, two key elements for ethical reflection on data-driven medicine are proposed: the controllability of information flows, including technical infrastructures that are conducive towards controllability, and a paradigm shift towards output-orientation in governance and policy.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.