Evidence map›Paper›PMID 32829463›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2021

Patient and clinician perspectives of desired features for a web-based self-management program (icanmanage.ca): exposing patients "hard work" of managing acute cancer.

Kristen R Haase, Jonathon Avery, Denise Bryant-Lukosius, Monika Kryzanowska, Vishal Kukretti, Geoffrey Liu, Samantha J Mayo, Jennifer Jones, Doris Howell

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Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Kristen R HaaseSchool of Nursing, University of British Columbia, Vancouver, BC, Canada. kristen.haase@ubc.ca.ORCID http://orcid.org/0000-0002-4457-2110
Jonathon AverySchool of Nursing, University of British Columbia, Vancouver, BC, Canada.
Denise Bryant-LukosiusSchool of Nursing, McMaster University and the Juravinski Cancer Centre, Hamilton, ON, Canada.
Monika KryzanowskaPrincess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada.
Vishal KukrettiPrincess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada.
Geoffrey LiuPrincess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada.
Samantha J MayoPrincess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada.
Jennifer JonesCentre for Health Wellness and Cancer Survivorship (ELLICSR), University of Toronto, Toronto, ON, Canada.
Doris HowellPrincess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposePeople with cancer benefit from self-management support, but report limitations in the type/amount of support they receive from healthcare professionals during cancer treatment. To intervene in this critical period, our team is developing a web-based self-management system, called I Can Manage Cancer (ICMC). The purpose of this paper is to report patient and clinician perspectives on the preferred features and functions in a self-management system that informed the development of the ICMC program.

methodsWe used descriptive qualitative methods, conducting interviews with people diagnosed with cancer (n = 16) and focus groups with cancer clinicians (n = 19). Data were thematically analyzed using the NVivo qualitative software.

findingsPeople with cancer describe engaging in hard work when employing cancer self-management. Our findings lend insight into features and functions they deem vital in a self-management system to support this work. Based on patient and clinician accounts, we developed three themes describing specific content and design features for the ICMC program to support self-management needs of people with cancer during the acute phase of treatment: (1) being able to connect, observe, and learn from others; (2) the ability to tailor and customize information; and (3) the capacity to track symptoms over time. Clinicians and patients emphasized the need to optimize all available resources to support people with cancer as they engage in the work to manage their diagnosis.

conclusionsOur findings describe the how peoples' cancer experiences and the gaps in self-management care can be enhanced by specific features and functions within the ICMC.

Indexed as

FemaleFocus GroupsHumansMaleMiddle AgedNeoplasmsSelf-ManagementCancerE-healthmHealthMobile healthOncologyPatient experienceSelf-managementSurvivorshipTechnology

Identifiers

PMID32829463

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.