ArticleJournal of the American Medical Informatics Association : JAMIA2021
Personal health information management among healthy older adults: Varying needs and approaches.
Article in Journal of the American Medical Informatics Association : JAMIA, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
10 citing papers in PubMed.
- "Managing the Binder": A Systematic Review of the Burdens Experienced by Patients and Carers in Managing Personal Health Information Across Fragmented Healthcare Systems.Healthcare (Basel, Switzerland) · 2026Review
- Unraveling the mechanisms of health management needs among rural elderly in underdeveloped Chinese regions: a machine learning approach to predictive model building and factor analysis.BMC geriatrics · 2026Article
- Analysis on the application of FMEA in 'instrument and equipment surface cleaning and disinfection' in hospitals based on standardization and cleaning and disinfection information system management.Frontiers in public health · 2024Article
- Older Adults' Trust and Distrust in COVID-19 Public Health Information: Qualitative Critical Incident Study.JMIR aging · 2023Article
- Alerts and Collections for Automating Patients' Sensemaking and Organizing of Their Electronic Health Record Data for Reflection, Planning, and Clinical Visits: Qualitative Research-Through-Design Study.JMIR human factors · 2023Article
- Factors associated with use of wearable technology to support activity, well-being, or a healthy lifestyle in the adult population and among older adults.PLOS digital health · 2023Article
- A Description of Personal Health Information Management Work With a Spotlight on the Practices of Older Adults: Qualitative e-Delphi Study With Professional Organizers.Journal of medical Internet research · 2023Article
- Personal Health Information Management Among Older Adults: Scoping Review.Journal of medical Internet research · 2021Article
- Building on Diana Forsythe's legacy: the value of human experience and context in biomedical and health informatics.Journal of the American Medical Informatics Association : JAMIA · 2021Article
- Older adults' personal health information management: The role and perspective of various healthcare providers.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2021Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
objectiveWith age, older adults experience a greater number of chronic diseases and medical visits, and an increased need to manage their health information. Technological advances in consumer health information technologies (HITs) help patients gather, track, and organize their health information within and outside of clinical settings. However, HITs have not focused on the needs of older adults and their caregivers. The goal of the SOARING (Studying Older Adults and Researching their Information Needs and Goals) Project was to understand older adult personal health information management (PHIM) needs and practices to inform the design of HITs that support older adults. MATERIALS AND
methodsDrawing on the Work System Model, we took an ecological approach to investigate PHIM needs and practices of older adults in different residential settings. We conducted in-depth interviews and surveys with adults 60 years of age and older.
resultsWe performed on-site in-person interview sessions with 88 generally healthy older adults in various settings including independent housing, retirement communities, assisted living, and homelessness. Our analysis revealed 5 key PHIM activities that older adults engage in: seeking, tracking, organizing, sharing health information, and emergency planning. We identified 3 major themes influencing older adults' practice of PHIM: (1) older adults are most concerned with maintaining health and preventing illness, (2) older adults frequently involve others in PHIM activities, and (3) older adults' approach to PHIM is situational and context-dependent. DISCUSSION: Older adults' approaches to PHIM are dynamic and sensitive to changes in health, social networks, personal habits, motivations, and goals.
conclusionsPHIM tools that meet the needs of older adults should accommodate the dynamic nature of aging and variations in individual, organizational, and social contexts.
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Registered trials
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