Evidence map›Paper›PMID 32823999›Full record

ArticleCancers2020

Health-Related Quality of Life and Experiences of Sarcoma Patients during the COVID-19 Pandemic.

Eugenie Younger, Alannah Smrke, Emma Lidington, Sheima Farag, Katrina Ingley, Neha Chopra, Alessandra Maleddu, Yolanda Augustin, Eve Merry, Roger Wilson and 9 more

Abstract read
In one paragraph

Article in Cancers, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers.

0numbers the graph read from it
0cells of the map it votes in
34citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

34 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Observational
  5. Article
  6. Review
  7. Patient-reported experiences of cancer care related to the COVID-19 pandemic in Switzerland.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023
    Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Patients' experiences of the COVID-19 pandemic and the change to telephone consultations in cancer care.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022
    Article
  13. Article
  14. Urologic oncology patient perspectives during COVID-19 treatment delays.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022
    Article
  15. Article
  16. Quality of Life in Patients with Pancreatic Cancer before and during the COVID-19 Pandemic.International journal of environmental research and public health · 2022
    Observational
  17. Impact of COVID-19 on the Quality of Life of Households in Saudi Arabia.International journal of environmental research and public health · 2022
    Article
  18. Review
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors.

Eugenie YoungerThe Royal Marsden NHS Foundation Trust, London SW3 6JJ, UK.ORCID 0000-0002-2088-3328
Alannah SmrkeThe Royal Marsden NHS Foundation Trust, London SW3 6JJ, UK.ORCID 0000-0002-9811-8159
Emma LidingtonThe Royal Marsden NHS Foundation Trust, London SW3 6JJ, UK.ORCID 0000-0001-6176-8054
Sheima FaragThe Royal Marsden NHS Foundation Trust, London SW3 6JJ, UK.
Katrina IngleyUniversity College London Hospitals NHS Foundation Trust, London NW1 2BU, UK.ORCID 0000-0002-1806-2686
Neha ChopraUniversity College London Hospitals NHS Foundation Trust, London NW1 2BU, UK.
Alessandra MaledduUniversity College London Hospitals NHS Foundation Trust, London NW1 2BU, UK.ORCID 0000-0001-9063-7862
Yolanda AugustinThe Royal Marsden NHS Foundation Trust, London SW3 6JJ, UK.
Eve MerryThe Royal Marsden NHS Foundation Trust, London SW3 6JJ, UK.
Roger WilsonSarcoma Patients EuroNet e.V./Association, D-61200 Wolfersheim, Germany.
Charlotte BensonThe Royal Marsden NHS Foundation Trust, London SW3 6JJ, UK.
Aisha MiahThe Royal Marsden NHS Foundation Trust, London SW3 6JJ, UK.
Shane ZaidiThe Royal Marsden NHS Foundation Trust, London SW3 6JJ, UK.
Anne McTiernanUniversity College London Hospitals NHS Foundation Trust, London NW1 2BU, UK.
Sandra J StraussUniversity College London Hospitals NHS Foundation Trust, London NW1 2BU, UK.
Palma DileoUniversity College London Hospitals NHS Foundation Trust, London NW1 2BU, UK.
Spyridon GennatasThe Royal Marsden NHS Foundation Trust, London SW3 6JJ, UK.ORCID 0000-0002-5635-7696
Olga HussonInstitute of Cancer Research, London SM2 5NG, UK.ORCID 0000-0002-1387-8686
Robin L JonesThe Royal Marsden NHS Foundation Trust, London SW3 6JJ, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Sarcomas are rare cancers with a spectrum of clinical needs and outcomes. We investigated care experiences and health-related quality of life (HRQoL) in sarcoma patients during the COVID-19 pandemic. Patients with appointments during the first two months of the UK lockdown were invited to complete a survey. Questions included views on care modifications, COVID-19 worry and psychosocial impact, and EORTC-QLQ-C30 items. 350 patients completed the survey; median age 58 (16-92) years. Care modifications included telemedicine (74%) and postponement of appointments (34%), scans (34%) or treatment (10%). Most felt the quality of care was not affected (72%), however, social life (87%) and emotional wellbeing (41%) were affected. Worry about COVID-19 infection was moderately high (mean 5.8/10) and significantly related to higher cancer-related worry; associated with lower emotional functioning irrespective of treatment intent. Curative patients (44%) with low resilient coping scores had significantly higher COVID-19 worry. Patients who did not know their treatment intent (22%) had significantly higher COVID-19 worry and insomnia. In summary, care experiences were generally positive; however, cancer-related worry, low resilient coping and uncertainty about treatment intent were associated with COVID-19 worry. These patients may benefit from additional psychological support during the pandemic and beyond.

Indexed as

COVID-19HRQoLpatient experiencesarcomas

Identifiers

PMID32823999
PMCPMC7547383

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.