ReviewYearbook of medical informatics2020
Developments in Privacy and Data Ownership in Mobile Health Technologies, 2016-2019.
Review in Yearbook of medical informatics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 35 papers, 6 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
35 citing papers in PubMed, 6 syntheses or guidelines pooled it.
- Patients' perspectives on medication adherence feedback interventions for managing long-term medications: a systematic review of qualitative evidence.International journal of clinical pharmacy · 2026Pooled it
- Quality Assessment of Digital Health Apps: Umbrella Review.Journal of medical Internet research · 2024Pooled it
- Current Status of Barriers to mHealth Access Among Patients With Stroke and Steps Toward the Digital Health Era: Systematic Review.JMIR mHealth and uHealth · 2024Pooled it
- Outcomes of Best-Practice Guided Digital Mental Health Interventions for Youth and Young Adults with Emerging Symptoms: Part II. A Systematic Review of User Experience Outcomes.Clinical child and family psychology review · 2024Pooled it
- Outcomes of Best-Practice Guided Digital Mental Health Interventions for Youth and Young Adults with Emerging Symptoms: Part I. A Systematic Review of Socioemotional Outcomes and Recommendations.Clinical child and family psychology review · 2024Pooled it
- How Is Quality of mHealth Interventions for Cancer Survivors Defined and Described? An Umbrella Review.JCO clinical cancer informatics · 2022Pooled it
- Data Privacy, Ownership, and Secondary Use of Clinical Data Generated by Continuous Glucose Monitors and Mobile Health Applications: A Review.Journal of diabetes science and technology · 2026Review
- Quality and Privacy Policy Compliance of Mental Health Care Apps in China: Cross-Sectional Evaluation Study.Journal of medical Internet research · 2025Article
- Patient Health Record Smart Network Challenges and Trends for a Smarter World.Sensors (Basel, Switzerland) · 2025Review
- Review
- Flowing data: women's views and experiences on privacy and data security when using menstrual cycle tracking apps.Oxford open digital health · 2025Article
- Self-monitoring of health - user viewpoints on gathering data using consumer health technologies during leisure time.Frontiers in digital health · 2025Article
- Discursive framework for a multi-disease digital health passport in Africa: a perspective.Globalization and health · 2024Review
- Precision Prevention: Using Data to Target the Right Intervention at the Right Intensity in the Right Community at the Right Time.Yearbook of medical informatics · 2024Article
- Medical Information Protection in Internet Hospital Apps in China: Scale Development and Content Analysis.JMIR mHealth and uHealth · 2024Article
- Mobile Health Interventions: A Frontier for Mitigating the Global Burden of Cardiovascular Disease.Cureus · 2024Review
- Understanding Patient Perspectives on the Use of Gamification and Incentives in mHealth Apps to Improve Medication Adherence: Qualitative Study.JMIR mHealth and uHealth · 2024Article
- Assessment of the Barriers and Enablers of the Use of mHealth Systems in Sub-Saharan Africa According to the Perceptions of Patients, Physicians, and Health Care Executives in Ethiopia: Qualitative Study.Journal of medical Internet research · 2024Article
- The promise of digital healthcare technologies.Frontiers in public health · 2023Review
- Digital skin imaging applications, part II: a comprehensive survey of post-acquisition image utilization features and technology standards.Skin research and technology : official journal of International Society for Bioengineering and the Skin (ISBS) [and] International Society for Digital Imaging of Skin (ISDIS) [and] International Society for Skin Imaging (ISSI) · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo survey international regulatory frameworks that serve to protect privacy of personal data as a human right as well as to review the literature regarding privacy protections and data ownership in mobile health (mHealth) technologies between January 1, 2016 and June 1, 2019 in order to identify common themes.
methodsWe performed a review of relevant literature available in English published between January 1, 2016 and June 1, 2019 from databases including PubMed, Google Scholar, and Web of Science, as well as relevant legislative background material. Articles out of scope (as detailed below) were eliminated. We categorized the remaining pool of articles and discrete themes were identified, specifically: concerns around data transmission and storage, including data ownership and the ability to re-identify previously de-identified data; issues with user consent (including the availability of appropriate privacy policies) and access control; and the changing culture and variable global attitudes toward privacy of health data.
resultsRecent literature demonstrates that the security of mHealth data storage and transmission remains of wide concern, and aggregated data that were previously considered "de-identified" have now been demonstrated to be re-identifiable. Consumer-informed consent may be lacking with regard to mHealth applications due to the absence of a privacy policy and/or to text that is too complex and lengthy for most users to comprehend. The literature surveyed emphasizes improved access control strategies. This survey also illustrates a wide variety of global user perceptions regarding health data privacy.
conclusionThe international regulatory framework that serves to protect privacy of personal data as a human right is diverse. Given the challenges legislators face to keep up with rapidly advancing technology, we introduce the concept of a "healthcare fiduciary" to serve the best interest of data subjects in the current environment.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.