ArticleJournal of patient experience2020
Parental Stress as a Child With Diabetes Transitions From Adolescence to Emerging Adulthood.
Article in Journal of patient experience, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
8 citing papers in PubMed.
- Transition and Transfer in Adolescence and Emerging Adulthood in Type 1 Diabetes: A Qualitative Study of Parents' Experiences.Nursing open · 2026Article
- The association between physical exercise and emotional eating among college students: the mediating roles of coping style and emotion regulation.Frontiers in nutrition · 2026Article
- Considerations in Transition of Pediatric Neurology Patients to Adult Care.Annals of the Child Neurology Society · 2025Review
- Community Caregivers' Perspectives on Health IT Use for Children With Medical Complexity: Qualitative Interview Study.JMIR pediatrics and parenting · 2025Article
- Transition to adult healthcare for immigrant youth: Practice recommendations.Health care transitions · 2024Article
- Emerging Adult and Caregiver Psychosocial Experiences with Severe Hypoglycemic Events and the Perceived Impact of Nasal Glucagon: A Cross-Sectional Study.Diabetes therapy : research, treatment and education of diabetes and related disorders · 2023Article
- Appel à l'action : des recommandations pour améliorer la transition des jeunes ayant des besoins de santé complexes vers les soins aux adultes.Paediatrics & child health · 2022Review
- A call for action: Recommendations to improve transition to adult care for youth with complex health care needs.Paediatrics & child health · 2022Review
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
This study examined parental and caregiver distress among families caring for children with type 1 diabetes as the child transitions into Emerging Adulthood. More than 96 hours of semistructured interviews were conducted with 19 adult caregivers including parents, grandparents, and other adult family members of 10 children. Each research partner participated in multiple face-to-face, 1- to 1.5-hour long-evolving interviews over the course of 4.5 years. Paradoxically, caregivers were found to experience significant increase in distress as their child with diabetes entered the developmental stage of Emerging Adulthood, 18 to 25 years old, by which time they should be masters of self-care, and parental distress should begin to decline. This increase in familial distress was associated with the emerging adults leaving the home, being unable to maintain an acceptable level of self-care, and experiencing declining health, frequent visits to the emergency department, and repeated hospitalizations. These findings suggest that parental distress from caring for a child with diabetes continues as the child ages, matures, and transitions into adulthood and may be exacerbated when the emerging adult with type 1 diabetes leaves the home and the direct observation and care of the parent.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.