Evidence map›Paper›PMID 32818674›Full record

Observational studyAnnals of physical and rehabilitation medicine2021

Emerging health challenges for children with physical disabilities and their parents during the COVID-19 pandemic: The ECHO French survey.

Marine Cacioppo, Sandra Bouvier, Rodolphe Bailly, Laetitia Houx, Mathieu Lempereur, Johanne Mensah-Gourmel, Christèle Kandalaft, Roxane Varengue, Alain Chatelin, Jacky Vagnoni and 7 more

2 registry-linked trialsAbstract readObservational Study
In one paragraph

Observational study in Annals of physical and rehabilitation medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 59 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
59citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04686565 unknown statusnot on this map

Evaluation The Effect of The Covid-19 Pandemic on Children With CerebralPalsy and The Caregivers' Quality of Life

TypeobservationalSponsorDiskapi Yildirim Beyazit Education and Research HospitalRan2020 to 2021Enrolled100ConditionsCerebral Palsy, Covid19, Telemedicine, Caregiver Quality of Life
NCT04916873 completednot on this map

Rehabilitation Status of Children With Cerebral Palsy and Anxiety of Their Caregivers During the Covid19 Pandemic

TypeobservationalSponsorFatih Sultan Mehmet Training and Research HospitalRan2020 to 2020Enrolled206ConditionsCerebral Palsy, Covid19, Anxiety
3 · Its place in the literature

Who cites it

59 citing papers in PubMed, 2 syntheses or guidelines pooled it.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors.

Marine CacioppoSSR pédiatrique, fondation Ildys, rue Alain-Colas, 29200 Brest, France; Service de médecine physique et de réadaptation, CHRU de Brest, Brest, France; Laboratoire de traitement de l'information médicale (LaTIM), inserm U1101, université Bretagne Occidentale, France. Electronic address: marine.cacioppo@ildys.org.
Sandra BouvierLaboratoire de traitement de l'information médicale (LaTIM), inserm U1101, université Bretagne Occidentale, France; CHRU de Brest, Brest, France.
Rodolphe BaillySSR pédiatrique, fondation Ildys, rue Alain-Colas, 29200 Brest, France; Laboratoire de traitement de l'information médicale (LaTIM), inserm U1101, université Bretagne Occidentale, France.
Laetitia HouxSSR pédiatrique, fondation Ildys, rue Alain-Colas, 29200 Brest, France; Service de médecine physique et de réadaptation, CHRU de Brest, Brest, France; Laboratoire de traitement de l'information médicale (LaTIM), inserm U1101, université Bretagne Occidentale, France.
Mathieu LempereurService de médecine physique et de réadaptation, CHRU de Brest, Brest, France; Laboratoire de traitement de l'information médicale (LaTIM), inserm U1101, université Bretagne Occidentale, France.
Johanne Mensah-GourmelSSR pédiatrique, fondation Ildys, rue Alain-Colas, 29200 Brest, France.
Christèle KandalaftExpert parent, Paris, France.
Roxane VarengueDépartement de neurologie pédiatrique, CHU d'Angers, Angers, France.
Alain ChatelinFondation paralysie cérébrale, France.
Jacky VagnoniFédération française des associations d'infirmes moteurs cérébraux, France.
Carole VuillerotService de médecine physique et de réadaptation pédiatrique, hôpital Mère-Enfant, hospices civils de Lyon, 69500 Bron, France; Institut neuromyogène CNRS UMR 5310 inserm U1217, Université de Lyon, Lyon, France.
Vincent GautheronService de médecine physique et de réadaptation pédiatrique, CHU de Saint-Étienne, Saint-Étienne, France; Université de Lyon, UJM Saint-Étienne, laboratoire interuniversitaire de biologie de la motricité, EA7424, 42023, Saint-Étienne, France.
Mickael DinomaisService de médecine physique et de réadaptation, CHU d'Angers, Les-Capucins, Angers, France; Laboratoire Angevin de recherche en ingénierie des systèmes (LARIS) EA7315, université d'Angers, Angers, France.
Elea DheillySSR pédiatrique, fondation Ildys, rue Alain-Colas, 29200 Brest, France; Laboratoire de traitement de l'information médicale (LaTIM), inserm U1101, université Bretagne Occidentale, France.
Sylvain BrochardSSR pédiatrique, fondation Ildys, rue Alain-Colas, 29200 Brest, France; Service de médecine physique et de réadaptation, CHRU de Brest, Brest, France; Laboratoire de traitement de l'information médicale (LaTIM), inserm U1101, université Bretagne Occidentale, France.
Christelle PonsSSR pédiatrique, fondation Ildys, rue Alain-Colas, 29200 Brest, France; Service de médecine physique et de réadaptation, CHRU de Brest, Brest, France; Laboratoire de traitement de l'information médicale (LaTIM), inserm U1101, université Bretagne Occidentale, France.
ECHO Group

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe daily lives of children with physical disabilities and their families have been significantly affected by the COVID-19 pandemic. The children face health risks, especially mental, behavioral, social and physical risks.

objectiveThis study aimed to identify potential healthcare issues relating to the wellbeing of disabled children, continuity of rehabilitation and medical care, and parental concerns during the COVID-19 lockdown.

methodsThe Enfant Confinement Handicap besOins (ECHO [child lockdown disability needs]) national survey was developed by a multidisciplinary group and disseminated in France from April 6, 2020 via email and social networks. This online survey was addressed to the parents of children with physical disabilities aged 0 to 18 years. It explored the experiences of children and their families during the lockdown. Information regarding children's wellbeing, rehabilitation and family organization was collected. The first 1000 eligible surveys were analyzed.

resultsThe children (mean [SD] age 9.5 [4.8] years) mostly had cerebral palsy (42%) or neuromuscular diseases (11%). The lockdown had negative effects on morale (44% of children), behaviour (55% of children) and social interactions (55% no contact with other children). Overall, 44% of children stopped physical activities; 76% were educated at home; 22% maintained medical follow-up, and 48% and 27% continued physiotherapy and occupational therapy respectively. For more than 60% of children, parents performed the therapy. The main parental concern was rehabilitation (72%) and their main difficulty was the mental load (50%); parents complained of lack of help and support (60%).

conclusionsThis study highlighted substantial effects on the health of children with physical disabilities and loss of opportunity, with a massive interruption of medical follow-up and rehabilitation, during the lockdown. Regular assessment of the health benefit/risk is essential to support families and ensure continuity of care during a pandemic.

Indexed as

Children with DisabilitiesCOVID-19Health Services Needs and DemandAdolescentCerebral PalsyChildChild, PreschoolContinuity of Patient CareCross-Sectional StudiesFemaleFranceHumansInfantMalePandemicsSurveys and QuestionnairesChildren with physical disabilitiesCOVID-19Health risksLockdownRehabilitation

Identifiers

PMID32818674
PMCPMC7434423

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.