ArticleThe Gerontologist2021
Stress, Burden, and Well-Being in Dementia and Nondementia Caregivers: Insights From the Caregiving Transitions Study.
Article in The Gerontologist, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. It is linked to trial NCT06364228 (Intranasal Oxytocin Intervention for Caregivers to Persons With Dementia), which is not on this map. Cited by 74 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Intranasal Oxytocin Intervention for Caregivers to Persons With Dementia
Who cites it
74 citing papers in PubMed, 1 synthesis or guideline pooled it, 128 citations in OpenAlex.
- Empathy and Psychological Outcomes in Informal Caregivers of Community-Dwelling Older Adults: A Systematic Review and Meta-Analysis.The journals of gerontology. Series B, Psychological sciences and social sciences · 2025Pooled it
- Effectiveness, feasibility, and acceptance of a general practice-based supportive intervention for dementia caregivers: the AD HOC trial.European geriatric medicine · 2026Trial
- Caregiving management needs and predictors for family caregivers of persons with dementia: a cross-sectional study.BMC geriatrics · 2024Trial
- Family Caregivers and the Need to Navigate Healthcare for People with Alzheimer's Disease and Related Dementias.Journal of general internal medicine · 2026Article
- Developing an Australian Value Set for the COCOON Carer Quality-of-Life Measure for Use in Economic Evaluations.PharmacoEconomics · 2026Article
- Adult day services, leisure time satisfaction, and psychosocial well-being among dementia caregivers.The Gerontologist · 2026Article
- Resilience and Protective Factors Associated with Well-Being Among Older Informal Caregivers: A Convergent Segregated Mixed Studies Systematic Review.European journal of investigation in health, psychology and education · 2026Review
- Health and health service use of Australian female live-in caregivers at multiple caregiver trajectory timepoints: a population-based dataset with time-matched controls.Age and ageing · 2026Article
- Moral Distress Among Family Caregivers: A Concept Analysis.Journal of advanced nursing · 2026Review
- Application-Based Interventions for Family Caregivers of Older Adults: Scoping Review.JMIR aging · 2026Article
- Climate change and mental health burden among caregivers in California.The Gerontologist · 2026Article
- Experiences of Formal and Informal Support Among Adult-Daughter Caregivers of People With Dementia in Sweden: A Qualitative Study.Dementia (London, England) · 2026Article
- Variations in Mental Distress Among Caregivers of Individuals With Chronic Illnesses and Comorbid Cognitive Impairment.American journal of preventive medicine · 2026Article
- Caregivers serving as confidants: relationship correlates and well-being by care-recipients' dementia status.The journals of gerontology. Series B, Psychological sciences and social sciences · 2026Article
- Living Arrangements and Cognitive Impairment Among Mexican American Older Adults: Nativity Differences.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Support that people living with Alzheimer's disease provide to their spousal caregivers: a qualitative study on dyadic perspectives.Aging & mental health · 2026Article
- Cortisol-to-DHEAS awakening response ratio in people with dementia and family caregivers: Associations with age, dementia severity and agitation.Comprehensive psychoneuroendocrinology · 2026Article
- Validation of the Danish version of the Carer Experience Scale in family caregivers of people with dementia.Health and quality of life outcomes · 2026Article
- Self-Perceived Preparedness Needs Among Caregivers of Veterans With and Without Dementia: An Exploratory Study Using Open-Ended Survey Data.JMIR formative research · 2026Article
- National and state-level variations in caregiving for persons living with dementia in the US.Frontiers in public health · 2026Observational
14 more citing papers are in PubMed but not listed here.
Corrections and comments
- Erratum issued
Authors and funding
6 authors at 3 institutions in 1 country.
Funding
Abstract
BACKGROUND AND
objectivesFew population-based studies have directly compared caregivers of persons with dementia to caregivers of persons with other disabilities (nondementia caregivers). We enrolled dementia and nondementia caregivers who were providing substantial and sustained care and compared these groups on measures of caregiver stressors, appraisals of burden, and well-being. RESEARCH DESIGN AND
methodsCaregivers (N = 251) who provided continuous care for at least 1 year and at least 5 h per week were recruited from the population-based REasons for Geographic And Racial Differences in Stroke (REGARDS) study. Caregivers reported on dementia caregiving status, stressors, burden, and well-being.
resultsForty-seven percent (n = 117) reported caring for a person with dementia. Dementia caregivers reported more stressors, providing more care for self-care and behavioral problems than nondementia caregivers. Dementia caregivers also reported higher appraisals of stress and burden, and more depressive symptoms, but did not differ from nondementia caregivers on mental and physical health quality of life. In multivariable-adjusted models, adjustment for the total number of care recipient problems attenuated differences between dementia and nondementia caregivers on burden and depression measures. DISCUSSION AND IMPLICATIONS: Dementia and nondementia caregivers showed relatively few differences in indicators of overall well-being in this population-based sample, perhaps because both groups of caregivers in this study were providing substantial care. Dementia caregivers may require special assistance with dementia-specific problems such as behavioral problems. Clinical interventions and policy changes targeting highly burdened caregivers are needed to support them in allowing their care recipients to age in place at home.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.