Evidence map›Paper›PMID 32815818›Full record

ArticleJMIR research protocols2020

Bridging the Gap in Community Care for Patients With Borderline Personality Disorder: Protocol for Qualitative Inquiry Into Patient, Caregiver, and Clinician Perspectives on Service Gaps and Potential Solutions for Severe Emotion Dysregulation.

Laura Friesen, Graham Gaine, Ellen Klaver, Kirsten Klingle, Devashree Parmar, Marianne Hrabok, Jill Kelland, Shireen Surood, Vincent Agyapong

Open access · goldAbstract read
In one paragraph

Article in JMIR research protocols, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.1field-weighted citation impact, top 44% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 4 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 2 institutions in 1 country.

Laura FriesenDepartment of Educational Psychology, University of Alberta, Edmonton, AB, Canada.ORCID https://orcid.org/0000-0002-5971-138X
Graham GaineDepartment of Educational Psychology, University of Alberta, Edmonton, AB, Canada.ORCID https://orcid.org/0000-0001-5505-7942
Ellen KlaverDepartment of Educational Psychology, University of Alberta, Edmonton, AB, Canada.ORCID https://orcid.org/0000-0003-1119-2434
Kirsten KlingleAddictions and Mental Health, Alberta Health Services, Edmonton, AB, Canada.ORCID https://orcid.org/0000-0002-3401-5441
Devashree ParmarAddictions and Mental Health, Alberta Health Services, Edmonton, AB, Canada.ORCID https://orcid.org/0000-0003-3633-4507
Marianne HrabokDepartment of Psychiatry, Faculty of Medicine, University of Alberta, Edmonton, AB, Canada.ORCID https://orcid.org/0000-0002-1663-9285
Jill KellandAddictions and Mental Health, Alberta Health Services, Edmonton, AB, Canada.ORCID https://orcid.org/0000-0002-6665-5128
Shireen SuroodAddictions and Mental Health, Alberta Health Services, Edmonton, AB, Canada.ORCID https://orcid.org/0000-0002-9776-2348
Vincent AgyapongAddictions and Mental Health, Alberta Health Services, Edmonton, AB, Canada.ORCID https://orcid.org/0000-0002-2743-0372
Alberta Health Services · CAUniversity of Alberta · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundBorderline personality disorder (BPD) is characterized by severe emotion dysregulation that is often complicated by comorbid diagnoses, deliberate self-harm, and chronic suicidal ideation. Unfortunately, current care pathways for individuals with BPD are strained by limited resources, inadequate training, and an overuse of emergency departments and crisis teams. Such barriers result in delayed access to effective treatment, which increases risk of deterioration, disability, and morbidity. A first step toward addressing these limitations of the current care pathway is to understand key stakeholders' lived experiences in this pathway and their perspectives on potential solutions.

objectiveThe purpose of this paper is to present a protocol for a study that explores the lived experiences of the current care pathway from the perspectives of patients with BPD, as well as their caregivers and clinicians.

methodsA qualitative approach is most appropriate for the exploratory nature of the research objective. Accordingly, 3 to 6 patients with a diagnosis of BPD, 3 caregivers of individuals with BPD, and 3 clinicians of patients diagnosed with BPD will be invited to participate in individual, semistructured interviews that focus on service experiences.

resultsIt is anticipated that results will yield insight into the lived experiences of patients with BPD, caregivers, and clinicians and provide a better understanding of the perceived gaps in services and potential solutions. Results are expected to be available in 12 months.

conclusionsThis paper describes a protocol for a qualitative study that seeks to understand the lived experiences and perspectives of key stakeholders (patients, caregivers, and clinicians) on the current care pathway for BPD. Results will provide a basis for future research in this area and will have the potential to inform training, practice, and policy. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/14885.

Indexed as

accessborderline personality disordercare pathwaysevaluationhealth care qualitymental health services

Identifiers

PMID32815818
PMCPMC7471890
OpenAlexW3012629858

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.