ArticleJournal of intellectual disability research : JIDR2020
Examining the impact of COVID-19 in ethnically diverse families with young children with intellectual and developmental disabilities.
Article in Journal of intellectual disability research : JIDR, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05909670 (FASTT Telehealth Behavioral Support Service for Caregivers of Children With Developmental Delay or Disability), which is not on this map. Cited by 126 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
FASTT Telehealth Behavioral Support Service for Caregivers of Children With Developmental Delay or Disability
Who cites it
126 citing papers in PubMed, 5 syntheses or guidelines pooled it, 339 citations in OpenAlex.
- The impact of the COVID pandemic on working age adults with disability: Meta-analysis of evidence from four national surveys.Health & social care in the community · 2022Pooled it
- The experience of caregivers of chronically ill patients during the COVID-19: A Systematic Review.Chronic illness · 2022Pooled it
- Promoting Mental Health in Parents of Young Children Using eHealth Interventions: A Systematic Review and Meta-analysis.Clinical child and family psychology review · 2022Pooled it
- Family and School Relationship during COVID-19 Pandemic: A Systematic Review.International journal of environmental research and public health · 2021Pooled it
- Exploring the Impact of COVID-19 on Mental Health Outcomes in Children and Adolescents: A Systematic Review.International journal of environmental research and public health · 2020Pooled it
- Outcomes from the ASPEN intervention program: a randomized clinical trial of a culturally adapted parent-mediated intervention program in low-resource settings.Frontiers in psychiatry · 2026Trial
- Assessment of COVID-19 Messaging Strategies to Increase Testing for Students With Intellectual and Developmental Disabilities.The Journal of school health · 2024Trial
- Feasibility and Acceptability of Spanish-Language Parenting Interventions for Young Children With Developmental Delays.Intellectual and developmental disabilities · 2023Trial
- Family quality of life in the context of Rett syndrome: insights from Brazilian families.Journal of community genetics · 2026Article
- Caregiver and student perspectives on school services for students with traumatic brain injury during the COVID-19 pandemic.Journal of pediatric rehabilitation medicine · 2026Article
- Caregiver-reported profiles of child functioning for children with developmental delays and disabilities 20 months after the onset of the COVID-19 pandemic.Frontiers in child and adolescent psychiatry · 2026Article
- Experiences of typically developing siblings of children with profound intellectual and multiple disabilities during the COVID-19 pandemic in Poland.International journal of developmental disabilities · 2026Article
- Impact of COVID-19 on Adaptive Skills and Psychiatric Symptoms in South Korean Children With Autism Spectrum Disorder.JAACAP open · 2025Article
- A longitudinal study of psychological distress during and after COVID-19 restrictions in caregivers of children with intellectual disability in the UK.JCPP advances · 2025Article
- The influence of parent and couple characteristics on parental responsivity during parent-child interactions in families of children with fragile X syndrome.Research in developmental disabilities · 2025Article
- COVID-19 risk perception moderates the relationships between health risk behaviors clustering and anxiety-depression comorbidity in adolescents.BMC psychology · 2025Article
- Article
- Family management styles of families of children and adolescents with developmental disabilities during the COVID-19 pandemic: a cross-sectional study.Scientific reports · 2025Article
- Lessons Learned from Family-School Relationships during COVID-19: The Experiences of Early Childhood Special Education Professionals.Journal of early childhood teacher education · 2025Article
- Changes in Child Health Care, Health, and Caregiver Mental Health During the COVID-19 Pandemic in Children with Autism and Special Health Care Needs.Maternal and child health journal · 2025Article
66 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 3 institutions in 1 country.
Funding
Abstract
backgroundThe COVID-19 pandemic introduced challenges to families with young children with developmental delays. Beyond the widespread concerns surrounding illness, loss of employment and social isolation, caregivers are responsible for overseeing their children's educational and therapeutic programmes at home often without the much needed support of professionals.
methodThe present study sought to examine the impact of COVID-19 in 77 ethnically, linguistically and socioeconomically diverse families with young children with intellectual and developmental disabilities (IDDs) in California and Oregon, who were participating in larger intervention studies. Parents responded to five interview questions about the impact of the pandemic, services for their child, silver linings or positive aspects, coping and their concerns about the long-term impact of the pandemic.
resultsParents reported that their biggest challenge was being at home caring for their children with the loss of many essential services. Parents reported some positive aspects of the pandemic, especially being together as a family. Although there were positive aspects of the situation, many parents expressed concern about long-term impacts of the pandemic on their children's development, given the loss of services, education and social engagement opportunities.
conclusionResults suggest that parents of young children with IDD report significant challenges at home during the pandemic. Professional support, especially during the reopening phases, will be critical to support family well-being and child developmental outcomes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.