ArticleJournal of racial and ethnic health disparities2021
Willingness to Participate in Health Research Among Community-Dwelling Middle-Aged and Older Adults: Does Race/Ethnicity Matter?
Article in Journal of racial and ethnic health disparities, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
28 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Examining the Role of Community Engagement in Enhancing the Participation of Racial and Ethnic Minoritized Communities in Alzheimer's Disease Clinical Trials; A Rapid Review.The journal of prevention of Alzheimer's disease · 2024Pooled it
- Racism and alterations in brain structure and function: A narrative review of emerging neuroimaging evidence in racialized individuals.Cognitive, affective & behavioral neuroscience · 2026Review
- "Like Taking Part in Star Wars": Qualitative Study Using Thematic Analysis to Explore the Acceptability and Experiences of Older Adults Participating in Remote Longitudinal Sleep and Dementia Research.Journal of medical Internet research · 2026Article
- Examining inclusive research practices to engage communities: a qualitative inquiry.BMC public health · 2026Article
- The Participation of Older Persons in the Adoption of Age-Friendly Care Models in Hospital Settings: A Scoping Review.Nursing & health sciences · 2026Article
- Digital and community-engaged approaches to improve research participant recruitment - Advice from forty convened experts.Journal of clinical and translational science · 2026Article
- Taxonomy of chronic illness research recruitment: a restricted scoping review.BMC health services research · 2025Article
- Association of Social Media Recruitment and Depression Among Racially and Ethnically Diverse Metabolic and Bariatric Surgery Candidates: Prospective Cohort Study.JMIR formative research · 2025Article
- Use of the chronic illness research recruitment taxonomy to evaluate recruitment strategies in an eHealth feasibility study.Contemporary clinical trials communications · 2025Article
- Same patient but different worlds: A state-of-the-art review translating best practice psychosocial care from musculoskeletal care to the orthopaedic context.BMC musculoskeletal disorders · 2024Review
- Recruitment Strategies for a Technology-Based Fall Risk Assessment Research Study Among Community-Dwelling Older Adults During a Global Pandemic.Journal of gerontological nursing · 2024Article
- COVID-19 clinical trials: who is likely to participate and why?Journal of comparative effectiveness research · 2024Article
- Living with Dementia in Aotearoa (LiDiA): A Feasibility Study for a Dementia Prevalence Study in Māori and Non-Māori Living in New Zealand.Dementia (London, England) · 2024Article
- PrEP to Party: Exploring MSM's PrEP Use and Interest in the Context of Sexually Themed Events.AIDS and behavior · 2024Article
- Technology-based group exercise interventions for people living with dementia or mild cognitive impairment: A scoping review.PloS one · 2024Article
- Representation of ethnic and racial minority groups in European vaccine trials: a quantitative analysis of clinical trials registries.BMJ public health · 2023Article
- Digital culturally tailored marketing for enrolling Latino participants in a web-based registry: Baseline metrics from the Brain Health Registry.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2023Article
- Variations in racial and ethnic groups' trust in researchers associated with willingness to participate in research.Humanities & social sciences communications · 2023Article
- Study Navigation and Enrollment in a Community Sample: Does Generational Cohort Matter?Journal of intergenerational relationships · 2023Article
- Enrollment of underrepresented racial and ethnic groups in the Rare and Atypical Diabetes Network (RADIANT).Journal of clinical and translational science · 2023Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
introductionOlder adults, including racial and ethnic minorities, are underrepresented in research. As the US population ages, the number of older racial and ethnic minority individuals will increase. Including these individuals in research is an important step towards reducing health disparities.
methodsWe used data from HealthStreet, a University of Florida community engagement program which uses community health workers to assess the health of the community, to assess willingness to participate in different types of health research by race/ethnicity. Descriptive statistics and logistic regression models were used to assess willingness to participate among adults aged 50 and older, by race/ethnicity (n = 4694).
resultsOur sample was 42.0% non-Hispanic White, 52.8% non-Hispanic Black, and 5.2% Hispanic. Non-Hispanic White participants reported more past research participation than non-Hispanic Black and Hispanic participants (28.7% vs. 19.0% and 19.2%, respectively). Compared with non-Hispanic White participants, non-Hispanic Black participants were less willing to participate in most types of studies, while Hispanic participants were less willing to participate in studies that might be seen as invasive (required blood sample, genetic sample, or participants to take medicine, or use of medical equipment).
conclusionsOur study provides investigators with a general profile of research preferences by race/ethnicity; compared with non-Hispanic White individuals, non-Hispanic Black individuals are less willing to participate in most studies, while Hispanic individuals are less willing to participate in studies that may be seen as invasive or demanding. It is imperative to include diverse older adults in health research. By tailoring research based on preferences we can improve recruitment in underrepresented populations.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.