Evidence map›Paper›PMID 32800698›Full record

ReviewBest practice & research. Clinical rheumatology2020

What do people need?

Neil Betteridge, Connie Camilleri, Linda Stoyanoff, Deborah Kopansky-Giles, Josef de Guzman, Souzi Makri, Lillian Mwaniki

Abstract readReview
In one paragraph

Review in Best practice & research. Clinical rheumatology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Review
  2. Article
  3. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Neil Betteridge8 Lochaline Street, London, W6 9SH, UK. Electronic address: neil@neilbetteridge.me.uk.
Connie CamilleriSt. Michael's Hospital, Unity Health Toronto, 30 Bond St, Toronto, Ontario, M5B 1W8, Canada. Electronic address: Connie.Camilleri@unityhealth.to.
Linda StoyanoffMHI St. Michael's Hospital, Unity Health Toronto, 30 Bond St. Toronto, Ontario, M58 1W8, Canada. Electronic address: Linda.Stoyanoff@unityhealth.to.
Deborah Kopansky-GilesUnity Health Toronto, St. Michael's Hospital, Department of Family and Community Medicine, 80 Bond Health Centre, Level 1, Room 12, Toronto, M5B 1X2, Ontario, Canada. Electronic address: Deborah.Kopansky-Giles@unityhealth.to.
Josef de GuzmanPsoriasis Philippines, P.O. Box 2497, Makati, Philippines. Electronic address: josef@psorphil.org.
Souzi MakriKamelias 1, 3110, Limassol, Cyprus. Electronic address: souzi.makri@cytanet.com.cy.
Lillian Mwaniki15 Mageta Road, Lavington P.O. Box 10232-00100, Nairobi, Kenya. Electronic address: lillianmwaniki@zmail.co.ke.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The key question addressed in this Chapter is "What do people need?", with "people" here meaning those who live with a rheumatic or musculoskeletal disease. The word "patient" is avoided at this point as not all of the problems or solutions identified are medical in nature. Many are personal, societal and/or environmental. The lead authors are all people who not only live with a rheumatic or musculoskeletal disease, but who are experienced "patient representatives". Therefore, their insights here stem from a combination of personal and collective experiences and views. Although from different continents, the authors identify a range of common barriers to social participation and optimum management of these conditions, such as late diagnosis, stigma and access to care. However, several solutions are common across these regions too, such as the need for supported self-management and greater public awareness of the impact of these diseases.

Indexed as

Musculoskeletal DiseasesSelf-ManagementHumansNeeds AssessmentAccessEarly diagnosisPatient empowermentPatient involvementRMDs (rheumatic and musculoskeletal diseases)Self-managementSocial inclusionStigma

Identifiers

PMID32800698
PMCPMC7425545

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.