ArticlePloS one2020
Listening to parents to understand their priorities for autism research.
Article in PloS one, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed, 2 syntheses or guidelines pooled it, 36 citations in OpenAlex.
- Priorities and Perspectives Regarding Goals and Outcomes of Support for Autistic Children Under 12 Years: A Systematic Review.Autism : the international journal of research and practice · 2026Pooled it
- The Impact of Autism Spectrum Disorder on Parents in Arab Countries: A Systematic Literature Review.Frontiers in psychology · 2022Pooled it
- Caregiver psychiatric symptoms, assessment delay, and access to supports for children with neurodevelopmental conditions.BMC psychiatry · 2025Article
- Parents' priorities in choosing treatment options for children with autism - perspectives from Serbia.International journal of developmental disabilities · 2025Article
- Wellbeing of parents raising children with autism spectrum disorder and the role of psychologists.Archives of medical science : AMS · 2025Article
- An integrative approach between neurodiversity perspectives and quality of life models for autistic people across the spectrum of support needs.Frontiers in psychiatry · 2025Review
- Autistic Adults' Priorities for Future Autism Employment Research: Perspectives from the United Kingdom.Autism in adulthood · 2024Article
- Content Analysis of Abstracts Published in Autism Journals in 2021: The year in Review.Journal of autism and developmental disorders · 2023Article
- Brief Report: The Impact of Social and News Media Coverage on the Dissemination of Autism Research.Journal of autism and developmental disorders · 2023Article
- Biases, Barriers, and Possible Solutions: Steps Towards Addressing Autism Researchers Under-Engagement with Racially, Ethnically, and Socioeconomically Diverse Communities.Journal of autism and developmental disorders · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Involving the autism community in research increases the real-world translation and impact of findings. The current study explored the research priorities of parents of school-aged children on the autism spectrum across the home, school, and community settings. A combination of content analysis of an online questionnaire (n = 134) and Q-sort methodology (n = 9) was used. The most commonly identified research priorities in the online questionnaire were child health and well-being (home setting), socialisation and social support (school), and community awareness and understanding of autism (community). The Q-sort method highlighted different top priorities, with understanding the parent, sibling, child and family impact and stress the highest ranked priority for home, teacher/staff education and support for the school, and recognizing and supporting anxiety for the community. The implications of the findings are discussed in relation to shifting the framework of autism research to align research agendas with parental priorities.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.