ArticleThe Gerontologist2021
"Making Sense of a Disease That Makes No Sense": Understanding Alzheimer's Disease and Related Disorders Among Caregivers and Providers Within Alaska Native Communities.
Article in The Gerontologist, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it, 25 citations in OpenAlex.
- Intersectional research on dementia care for post-migrants and ethnic minority groups: a scoping review.Frontiers in dementia · 2025Pooled it
- Awareness of Family Caregiver Resources and Alignment with Traditional Culture in a Midwest Tribal Nation in the United States.Journal of community health · 2026Article
- If a Family Member Develops Alzheimer's Disease: Gender Differences in Help-Seeking Intentions Among American Indians.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Self-efficacy as a mediator between dementia knowledge and screening intention among American Indian adults.Innovation in aging · 2026Article
- Factors of caregiver support under integrated care for older adults in rural areas: a scoping review.Frontiers in public health · 2026Article
- Dementia Risk Reduction Education Programs and Resources for Indigenous Peoples of Canada, Aotearoa New Zealand, United States of America and Australia: A Scoping Review.Dementia (London, England) · 2026Article
- Reflecting upon Session 8 of the 2023 dementia care summit: Diversity beyond outreach, recruitment, and retention.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Article
- Factors associated with care partner identification and education among hospitalized persons living with dementia.PEC innovation · 2024Article
- Algorithm-defined memory impairment in older American Indians: The Strong Heart Study.Neuropsychology · 2024Article
- Cognitive Impairment and Social Determinants of Health Among Indigenous Women.The Gerontologist · 2024Article
- Testing the 'Faith Moves Mountains model' to increase Alzheimer's disease awareness, detection, and diagnosis among rural, racially, and ethnically diverse older adults.Aging & mental health · 2024Article
- 2024 Alzheimer's disease facts and figures.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2024Article
- Promoting diverse perspectives: Addressing health disparities related to Alzheimer's and all dementias.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2024Article
- Article
- Alzheimer's disease and its related dementias in US Native Americans: A major public health concern.Ageing research reviews · 2023Review
- Indigenous Elder-centered methodology: research that decolonizes and indigenizes.AlterNative (Auckland, N.Z. : 2005) · 2023Article
- Diverse rural caregivers for individuals with Alzheimer's disease or related dementias: analysis of health factors at the individual, interpersonal, and community level.Aging & mental health · 2023Article
- Health promotion interventions supporting Indigenous healthy ageing: a scoping review.International journal of circumpolar health · 2021Article
- Dementia, Substance Misuse, and Social Determinants of Health: American Indian and Alaska Native Peoples' Prevention, Service, and Care.Chronic stress (Thousand Oaks, Calif.)Article
Corrections and comments
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Authors and funding
4 authors at 4 institutions in 1 country.
Funding
Abstract
BACKGROUND AND
objectivesWith the rate of Alzheimer's disease and related dementias (ADRD) increasing among Alaska Indian/Alaska Native (AI/AN) people, the Alaska Native Health system is ill-prepared to meet the challenges associated with the growing population at risk of ADRD. The high cost of care, inadequate training of health care providers, and lack of supportive services for caregivers are especially concerning. RESEARCH DESIGN AND
methodsInterviews were conducted with 22 AN caregivers for ANs with ADRD and 12 ANs and non-Native health care providers in communities across Alaska. Interviews lasted approximately 60 min and were transcribed verbatim. We employed directed content analysis to examine the major agreements and disagreements between the participants' understandings of ADRD in each of the domains of Kleinman's Explanatory Model of Illness.
resultsCaregivers and health care providers expressed concerns about the lack of understanding, resources, and awareness of ADRD among ANs in rural and urban communities. Both caregivers and providers recognized the need to obtain an early diagnosis, blend Western and traditional medicines, promote lifestyle and dietary changes, and foster training for caregivers. Health care providers acknowledged their limited exposure to AN understanding of ADRD and wish to receive culturally relevant training to better serve AN. DISCUSSION AND IMPLICATIONS: As the older AN adult population grows, the need for culturally responsive training and support services will continue to increase. We recommend establishing rural outreach and support groups for caregivers, developing an understanding of how ANs view ADRD to train and educate health care providers, and implement screening early for memory loss during routine medical examinations.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.