ArticleBMJ paediatrics open2020
Screening for caregiver psychosocial risk in children with medical complexity: a cross-sectional study.
Article in BMJ paediatrics open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed.
- Effect of Isolation On Mental Health Profiles of Caregivers of Children with Medical Complexity: A Mixed Methods Embedded Case Study.International journal of pediatrics · 2026Article
- Emotional impact, burnout, and isolation among primary family caregivers of children with medical complexity.Families, systems & health : the journal of collaborative family healthcare · 2025Article
- Coping and Meaning-Making Strategies Described by Parents of Children with Medical Complexity.Clinical practice in pediatric psychology · 2025Article
- Screening for Caregiver Stress in an Urban Medical Home for Children with Medical Complexity: Results of a Pilot Study.Children (Basel, Switzerland) · 2025Article
- The Evaluation of Change in Psychosocial Risk With Caregivers of Children With Chronic Kidney Disease: A Short-term Longitudinal Mixed-Methods Study.Canadian journal of kidney health and disease · 2025Article
- Adaptation and pilot implementation of the Psychosocial Assessment Tool for Autism Spectrum Disorders (PAT-ASD).Journal of autism and developmental disorders · 2023Review
- Relevance of Potential Contributing Factors for the Development and Maintenance of Irritability of Unknown Origin in Pediatric Palliative Care.Children (Basel, Switzerland) · 2023Article
- Caring for children with new medical technology at home: parental perspectives.BMJ paediatrics open · 2023Article
- Distress and the Long-Stay Pediatric Intensive Care Unit Admission: A Longitudinal Study of Parents and the Medical Team.Journal of pediatric intensive care · 2023Article
- Article
- Exploring the experience of family caregivers of children with medical complexity during COVID-19: a qualitative study.BMC pediatrics · 2023Article
- Increased behavioral health needs and continued psychosocial stress among children with medical complexity and their families during the COVID-19 pandemic.Infant mental health journal · 2022Article
- Families following pediatric traumatic medical events: identifying psychosocial risk profiles using latent profile analysis.European journal of psychotraumatology · 2022Article
- Intervention research to improve care and outcomes for children with medical complexity and their families.Current problems in pediatric and adolescent health care · 2021Article
- Family Caregivers of Children With Medical Complexity: Changes in Health-Related Quality of Life and Experiences of Care Coordination.Academic pediatricsArticle
Corrections and comments
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Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo quantify psychosocial risk in family caregivers of children with medical complexity using the Psychosocial Assessment Tool (PAT) and to investigate potential contributing sociodemographic factors.
designCross-sectional study.
settingFamily caregivers completed questionnaires during long-term ventilation and complex care clinic visits at The Hospital for Sick Children, Toronto, Ontario, Canada. PATIENTS: A total of 136 family caregivers of children with medical complexity completed the PAT questionnaires from 30 June 2017 through 23 August 2017.
main outcome measuresMean PAT scores in family caregivers of children with medical complexity. Caregivers were stratified as 'Universal' low risk, 'Targeted' intermediate risk or 'Clinical' high risk. The effect of sociodemographic variables on overall PAT scores was also examined using multiple linear regression analysis. Comparisons with previous paediatric studies were made using T-test statistics.
results136 (103 females (76%)) family caregivers completed the study. Mean PAT score was 1.17 (SD=0.74), indicative of 'Targeted' intermediate risk. Sixty-one (45%) caregivers were classified as Universal risk, 60 (44%) as Targeted risk and 15 (11%) as Clinical risk. Multiple linear regression analysis revealed an overall significant model (p=0.04); however, no particular sociodemographic factor was a significant predictor of total PAT scores.
conclusionFamily caregivers of children with medical complexity report PAT scores among the highest of all previously studied paediatric populations. These caregivers experience significant psychosocial risk, demonstrated by larger proportions of caregivers in the highest-risk Clinical category.
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