Evidence map›Paper›PMID 32778059›Full record

ArticleBMC geriatrics2020

Study protocol: pragmatic randomized control trial of my tools 4 care- in care (MT4C-in care) a web-based tool for family Carers of persons with dementia residing in long term care.

Wendy Duggleby, Hannah O'Rourke, Jennifer Swindle, Shelley Peacock, Carrie McAiney, Pamela Baxter, Genevieve Thompson, Véronique Dubé, Cheryl Nekolaichuk, Sunita Ghosh and 1 more

Registry-linked trialOpen access · goldAbstract read
In one paragraph

Article in BMC geriatrics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04226872 (Supporting Family Caregivers of Persons Living With Dementia), which is not on this map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
0.5field-weighted citation impact, top 23% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04226872 nacompletednot on this map

Supporting Family Caregivers of Persons Living With Dementia: Effectiveness and Sustainability of My Tools 4 Care-In Care

TypeinterventionalSponsorUniversity of AlbertaRan2020 to 2021Enrolled234ConditionsDementia, FamilyArmsMy Tools for Care - In Care
3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 5 citations in OpenAlex.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 8 institutions in 1 country.

Wendy DugglebyFaculty of Nursing, University of Alberta, Level 3 Edmonton Clinic Health Academy, 11405 87 Avenue, Edmonton, Alberta, T6G 1C9, Canada. wendy.duggleby@ualberta.ca.ORCID 0000-0002-3444-0392
Hannah O'RourkeFaculty of Nursing, University of Alberta, Level 3 Edmonton Clinic Health Academy, 11405 87 Avenue, Edmonton, Alberta, T6G 1C9, Canada.
Jennifer SwindleFaculty of Nursing, University of Alberta, Level 3 Edmonton Clinic Health Academy, 11405 87 Avenue, Edmonton, Alberta, T6G 1C9, Canada.
Shelley PeacockCollege of Nursing, University of Saskatchewan, 104 Clinic Place, Saskatoon, SK, S7N 2Z4, Canada.
Carrie McAineySchlegel-UW Research Institute for Aging, School of Public Health and Health Systems, University of Waterloo, 200 University Avenue West, Waterloo, ON, N2L 3G1, Canada.
Pamela BaxterSchool of Nursing, McMaster University, 1280 Main St. W, Hamilton, ON, L8S 4K1, Canada.
Genevieve ThompsonCollege of Nursing, Faculty of Health Sciences, University of Manitoba, 89 Curry Place, Winnipeg, MB, R3T 2N2, Canada.
Véronique DubéFaculty of Nursing, Université de Montréal Marguerite d'Youville Research, Université de Montréal, PO Box 6128, Centre-ville Station, Montréal, QC, H3C 3J7, Canada.
Cheryl NekolaichukDepartment of Oncology, University of Alberta, c/o Palliative Institute, DC 404, 1090 Youville Drive, Edmonton, AB, T6L 0A3, Canada.
Sunita GhoshDepartments of Medical Oncology and Mathematical and Statistical Sciences, University of Alberta, Edmonton, Canada.
Jayna Holroyd-LeducDivision of Geriatric Medicine, Departments of Medicine and Community Health Sciences, University of Calgary, 1403 - 29th Street NW, Calgary, AB, T2N2T9, Canada.
University of Alberta · CAAlberta Health Services · CAMcMaster University · CAUniversité de Montréal · CAUniversity of Calgary · CAUniversity of Manitoba · CAUniversity of Saskatchewan · CAUniversity of Waterloo · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundWhen a family member resides in long term care facility (LTC), family carers continue caregiving and have been found to have decreases in mental health. The aim of My Tools 4 Care - In Care (an online intervention) is to support carers of persons living with dementia residing in LTC through transitions and increase their self-efficacy, hope, social support and mental health. This article comprises the protocol for a study to evaluate My Tools 4 Care-In Care (MT4C-In Care) by asking the following research questions: 1) Is there a 2 month (immediately post-intervention) and 4 month (2 months post-intervention) increase in mental health, general self-efficacy, social support and hope, and decrease in grief and loneliness, in carers of a person living with dementia residing in LTC using MT4C-In CARE compared to an educational control group? 2) Do carers of persons living with dementia residing in LTC perceive My Tools 4 Care- In Care helps them with the transitions they experience?

methodsThis study is a single blinded pragmatic mixed methods randomized controlled trial. Approximately 280 family carers of older persons (65 years of age and older) with dementia residing in LTC will be recruited for this study. Data will be collected at three time points: baseline, 2 month, and 4 months. Based on the feasibility study, we hypothesize that participants using MT4C-In Care will report significant increases in hope, general self-efficacy, social support and mental health quality of life, and significant decreases in grief and loneliness from baseline, as compared to an educational control group. To determine differences between groups and over time, generalized estimating equations analysis will be used. Qualitative descriptive analysis will be used to further evaluate MT4C-In Care and if it supports carers through transitions. DISCUSSION: Data collection will begin in four Canadian provinces (Alberta, Manitoba, Ontario and Saskatchewan) in February 2020 and is expected to be completed in June 2021. The results will inform policy and practice as MT4C-In Care can be revised for local contexts and posted on websites such as those hosted by the Alzheimer Society of Canada.

trial registrationNCT04226872 ClinicalTrials.gov Registered 09 January 2020 Protocol Version #2 Feb 19, 2020.

Indexed as

CaregiversDementiaAgedAged, 80 and overHumansInternetLong-Term CareManitobaOntarioQuality of LifeSaskatchewanCarersDementiaLong term careOnline interventionPragmatic trial

Identifiers

PMID32778059
PMCPMC7418203
OpenAlexW3048048454

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.