ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2021
Prevalence and correlates of unmet palliative care needs in dyads of Chinese patients with advanced cancer and their informal caregivers: a cross-sectional survey.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 1 of them a synthesis that pooled it.
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Who cites it
26 citing papers in PubMed, 1 synthesis or guideline pooled it, 48 citations in OpenAlex.
- Informal Caregiving and Alzheimer's Disease: The Psychological Effect.Medicina (Kaunas, Lithuania) · 2022Pooled it
- Defining and measuring unmet palliative care needs among people with life-limiting illness: A scoping review of international evidence.Palliative medicine · 2026Article
- Caregiving ability assessment tools for family caregivers of disabled older adults: a scoping review.Frontiers in public health · 2026Article
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- Caregiver burden and anticipatory grief among family caregivers of patients with advanced cancer in a palliative context: chain mediating role of social support and positive coping.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
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- Development and psychometric evaluation of the needs assessment questionnaire for family caregivers of end-of-life older adults in home hospice care.Scientific reports · 2025Article
- Interdependence relationships between unmet supportive care needs and its influencing factors in couples coping with colorectal cancer: a cross-sectional study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Navigating limited resources: experiences of caregivers for elderly terminal cancer patients in a region with limited palliative care services.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Identifying palliative home care needs of patients with advanced cancer: a cross-sectional study.Frontiers in psychiatry · 2025Article
- Communication between Caregivers of Adults with Cancer and Healthcare Professionals: a Review of Communication Experiences, Associated Factors, Outcomes, and Interventions.Current oncology reports · 2024Review
- End-of-life care needs in cancer patients: a qualitative study of patient and family experiences.BMC palliative care · 2024Article
- Psychological Distress Among Parents of Children With Chronic Health Conditions and Its Association With Unmet Supportive Care Needs and Children's Quality of Life.Journal of pediatric psychology · 2024Article
- Influencing factors of home hospice care needs of family caregivers of the older adult with chronic diseases at the end of life in China: a cross-sectional study.Frontiers in public health · 2024Article
- Influencing factors of home hospice care needs of the older adults with chronic diseases at the end of life in China: a cross-sectional study.Frontiers in public health · 2024Article
- Article
- Exploring the influencing factors of unmet palliative care needs in Chinese patients with end-stage renal disease undergoing maintenance hemodialysis: a cross-sectional study.BMC palliative care · 2023Article
- Risk factors associated with the comprehensive needs of cancer caregivers in China.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Quality of Life vs. Supportive Care Needs for Oral Cancer Caregivers: Are They Related?Current oncology (Toronto, Ont.) · 2023Article
- Experiences and coping strategies of women caring for their husbands with cancer at the Cancer Diseases Hospital in Lusaka, Zambia: a descriptive phenomenological approach.Ecancermedicalscience · 2023Article
Corrections and comments
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Authors and funding
5 authors at 3 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo examine palliative care needs of advanced cancer patients and their informal caregivers and correlates of their needs within Chinese context.
methodsThis was a cross-sectional survey conducted in two study sites in Mainland China. Patients and caregivers were recruited in dyads. Patients completed the following questionnaires: Problems and Needs in Palliative Care-short version, Hospital Anxiety and Depression Scale (HADS), Edmonton Symptom Assessment Scale (ESAS), Medical Outcomes Study-Social Support Survey (MOS-SSS), Brief Coping Orientation to Problems Experienced Scale (Brief-COPE), and Quality-of-Life Questionnaire Core 15-Palliative Care Scale. Questionnaires for caregivers were as follows: Comprehensive Needs Assessment Tool in Cancer for Caregivers, HADS, ESAS, MOS-SSS, Brief-COPE, and Caregiver Quality of Life Index-Cancer. All of the outcome variables were selected based on a conceptual framework of palliative care needs assessment.
resultsFour hundred nineteen patient-caregiver dyads completed this survey. Patients' unmet palliative care needs were mainly related to financial (85.2%), informational (82.3%), physical (pain) (69.7%), and psychological (64.9%) domains. Caregivers' commonly reported unmet needs mainly focused on the domains of healthcare staff (95.0%), information (92.1%), and hospital facilities and services (90.5%). Patients' greater severity of symptom distress, presence of anxiety and/or depression, use of coping strategies particularly the less use of problem-focused coping, and caregivers' poorer quality of life were identified as key negative predictors of the needs of both patients and caregivers (p < 0.05).
conclusionsBoth patients and caregivers had context-bounded palliative care needs. In addition to increasing the amount of external asistance, more emphasis should be placed on screening for physical and psychological distress, the use of coping strategies, and the well-being of caregivers to help identify those in need for more clinical attention and specific interventions.
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