Evidence map›Paper›PMID 32770965›Full record

ArticleBMC psychiatry2020

"It means so much for me to have a choice": a qualitative study providing first-person perspectives on medication-free treatment in mental health care.

Christine H Oedegaard, Larry Davidson, Brynjulf Stige, Marius Veseth, Anne Blindheim, Linda Garvik, Jan-Magne Sørensen, Øystein Søraa, Ingunn Marie Stadskleiv Engebretsen

Open access · goldAbstract read
In one paragraph

Article in BMC psychiatry, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed
3.3field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 54 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 3 institutions in 2 countries.

Christine H OedegaardHaukeland University Hospital, Kronstad DPS, Pb 1400, 5021, Bergen, Norway. christine.odegaard@helse-bergen.no.ORCID 0000-0003-4738-7962
Larry DavidsonDepartment of Psychiatry, Yale Medical School, New Haven, Connecticut, USA.
Brynjulf StigeThe Grieg Academy, University of Bergen, Pb. 7800, 5020, Bergen, Norway.
Marius VesethDepartment of Clinical Psychology, University of Bergen, Pb. 7807, 5020, Bergen, Norway.
Anne BlindheimHaukeland University Hospital, Kronstad DPS, Pb 1400, 5021, Bergen, Norway.
Linda GarvikHvite Ørn User Organisation, Thomles gt. 4, 0270, Oslo, Norway.
Jan-Magne SørensenHvite Ørn User Organisation, Thomles gt. 4, 0270, Oslo, Norway.
Øystein SøraaHvite Ørn User Organisation, Thomles gt. 4, 0270, Oslo, Norway.
Ingunn Marie Stadskleiv EngebretsenCentre for International Health, Department of Global Public Health and Primary Care, University of Bergen, Pb. 7804, 5020, Bergen, Norway.
University of Bergen · NOHaukeland University Hospital · NOYale University · US

Funding

Yale Clinical and Translational Science Award (U Component)UL1TR001863 · NCATS · YALE UNIVERSITY · PI John H. Krystal, LUCILA OHNO-MACHADO · 2016 to 2026
$102.9M
NCATS NIH HHS UL1 TR001863
6 · The paper itself

Abstract

backgroundIn 2016, the Western Norway Regional Health Authority started to integrate more evidence-based psychosocial interventions into the existing mental health care, emphasizing the right for persons with psychosis to choose medication-free treatment. This change emerged from the debate on the effectiveness and adverse effects of the use of antipsychotic medication. Aspects beyond symptom reduction, such as interpersonal relationships, increased understanding of one's own pattern of suffering, hope and motivation, are all considered important for the personal recovery process.

methodsThis study explores whether these aspects were present in users' descriptions of their recovery processes within the medication-free treatment programme in Bergen, Western Norway. We interviewed ten patients diagnosed with psychosis who were eligible for medication-free services about their treatment experiences. Data were analysed using Attride-Stirling's thematic network approach.

resultsThe findings show a global theme relating to personal recovery processes facilitated by the provision of more psychosocial treatment options, with three organizing subthemes: interpersonal relationships between patients and therapists, the patient's understanding of personal patterns of suffering, and personal motivation for self-agency in the recovery process. Participants described an improved relationship with therapists compared to previous experiences. Integrating more evidence-based psychosocial interventions into existing mental health services facilitated learning experiences regarding the choice of treatment, particularly the discontinuation of medication, and appeared to support participants' increased self-agency and motivation in their personal recovery processes.

conclusionHealth care in Norway is perhaps one step closer to optimizing care for people with psychosis, allowing for more patient choice and improving the dialogue and hence the interpersonal relationship between the patient and the therapist. Personal patterns of suffering can be explored within a system aiming to support and have a higher level of acceptance for the discontinuation of medication. Such a system requires personal agency in the treatment regimen, with more focus on personal coping strategies and more personal responsibility for the recovery process.

Indexed as

Mental Health ServicesPsychotic DisordersHumansMental HealthNorwayQualitative ResearchCommunicationDecision makingLived experienceMedicationPsychosisQuality of careRecovery

Identifiers

PMID32770965
PMCPMC7414551
OpenAlexW3047896195

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.