ReviewActa diabetologica2021
National diabetes registries: do they make a difference?
Review in Acta diabetologica, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07031141 (Diabetes Foot Africa Region Registry), which is not on this map. Cited by 34 papers, 4 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Diabetes Foot Africa Region Registry
Who cites it
34 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Incidence of acute myocardial infarction in people with diabetes compared to those without diabetes: a systematic review.Systematic reviews · 2026Pooled it
- International Society for Pediatric and Adolescent Diabetes Clinical Practice Consensus Guidelines 2024: Glycemic Targets.Hormone research in paediatrics · 2024Guideline
- Characteristics of diabetes mellitus patients in Turkey: An analysis of national electronic health records.Turkish journal of medical sciences · 2023Pooled it
- The Incidence of Adult-Onset Type 1 Diabetes: A Systematic Review From 32 Countries and Regions.Diabetes care · 2022Pooled it
- Building a type 1 diabetes registry in South Africa: Insights from a national multi-stakeholder workshop.African journal of primary health care & family medicine · 2026Article
- Global trends in the prevalence of type 2 diabetes mellitus: understanding trajectories through conceptual frameworks.Hormones (Athens, Greece) · 2026Review
- Development of a comprehensive real-world evidence dataset to inform diabetes policy: the diabetes data cell project.BMC public health · 2026Article
- Implementing a federated regional diabetes register in a decentralized health system: implications for healthcare organization and the European Health Data Space.Frontiers in public health · 2026Article
- A cohort description and comparison of four European national diabetes registries for the REDDIE project.Diabetic medicine : a journal of the British Diabetic Association · 2025Article
- Real-World and Clinical Implications of Patient Education, Lifestyle and Treatment Adherence in Romanian Diabetes Care: An Observational Study.Journal of clinical medicine · 2025Article
- Diabetes registries-key enablers of high-quality care.The Lancet regional health. Europe · 2025Article
- Evaluating diabetic retinopathy service utilisation amongst Cardiology Department admissions.Irish journal of medical science · 2025Article
- Effect of Digital Tools on the Knowledge and Performance of Frontline Health Workers For Diabetes Control in Myanmar: Cost-Effective Analysis and Quasi Experimental Study.JMIR nursing · 2025Article
- Navigating diabetes care inequities: an observational study linking chronic care model's structural elements to process and outcomes of type 2 diabetes care in Belgium.International journal for equity in health · 2025Observational
- Latent class analysis of the capacity of countries to manage diabetes and its relationship with diabetes-related deaths and healthcare costs.BMC health services research · 2025Article
- Understanding Patient Registries for Diabetes: A Scoping Review of Published Literature.Journal of patient experience · 2025Article
- A taxonomy of indicators for non-communicable diseases: agreement, definition, and contextual description using diabetes as a case study.Frontiers in public health · 2025Article
- Improving Identification of Patients Experiencing Homelessness in the Electronic Health Record: A Curated Registry Approach.Journal of general internal medicine · 2024Article
- Incidence trend of type 2 diabetes from 2012 to 2021 in Germany: an analysis of health claims data of 11 million statutorily insured people.Diabetologia · 2024Article
- The Development of the Municipal Registry of People with Diabetes in Porto Alegre, Brazil.Journal of clinical medicine · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
aimsThe global epidemic of diabetes mellitus continues to expand, including its large impact on national health care. Measuring diabetes outcomes and their causes of variation highlights areas for improvement in care and efficiency gains; large registries carry this potential. By means of a systematic review, we aimed to give an overview of national registries worldwide by quantifying their data and assessing their influence on diabetes care.
methodsThe literature on MEDLINE up to March 31, 2020, was searched, using keywords diabetes mellitus, national, registry, registration, and/or database. National disease-specific registries from corresponding articles were included. Database characteristics and clinical variables were obtained. All registries were compared to the ICHOM standard set of outcomes.
resultsWe identified 12 national clinical diabetes registries, comprising a total of 7,181,356 diabetic patients worldwide. Nearly all registries recorded weight, HbA1c, lipid profile, and insulin treatment; the recording of other variables varied to a great extent. Overall, registries corresponded fairly well with the ICHOM set. Most registries proved to monitor and improve the quality of diabetes care using guidelines as a benchmark. The effects on national healthcare policy were more variable and often less clear.
conclusionsNational diabetes registries confer clear insights into diagnostics, complications, and treatment. The extent to which registries influenced national healthcare policy was less clear. A globally implemented standard outcome set has the potential to improve concordance between national registries, enhance the comparison and exchange of diabetes outcomes, and allocate resources and interventions where most needed.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.