Stress and Coping in Caregivers of Children with RASopathies: Assessment of the Impact of Caregiver Conferences.

Athena Ganetsos, Ellyn Farrelly, Pilar Magoulas, David A Stevenson

Abstract read

In one paragraph

Article in Journal of pediatric genetics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it

0cells of the map it votes in

1citing papers in PubMed

–field-weighted citation impact

1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

Patient and caregiver perspectives on neurodevelopmental and mental health care for RASopathies.Therapeutic advances in rare disease
Article

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Athena GanetsosDivision of Medical Genetics, Department of Pediatrics, Stanford University, Palo Alto, California, United States.

Ellyn FarrellyDivision of Medical Genetics, Department of Pediatrics, Stanford University, Palo Alto, California, United States.

Pilar MagoulasDepartment of Molecular and Human Genetics, Baylor College of Medicine, Texas Children's Hospital, Houston, Texas, United States.

David A StevensonDivision of Medical Genetics, Department of Pediatrics, Stanford University, Palo Alto, California, United States.ORCID 0000-0002-0686-4075

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The study aimed to assess baseline stress and coping mechanisms among caregivers of children with RASopathies (i.e., cardiofaciocutaneous and Costello's syndrome) and the impact of attending biennial caregiver conferences. Caregivers completed the Perceived Stress Scale, Coping Health Inventory for Parents, and demographic surveys prior to family conferences, and 1- and 6-month postconferences. Baseline stress was increased and associated with child age, parental age, and number of conferences attended. After 1 month, caregiver stress was lowered among men and caregivers attending ≥2 support conferences.

Indexed as

cardiofaciocutaneous syndromeCostello syndromeRASopathies

Identifiers

PMID32765926

DOI10.1055/s-0040-1712178

PMCPMC7396473

What OpenQuestion holds

Textmetadata

Read underepoch 390

Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.