Evidence map›Paper›PMID 32765647›Full record

ArticlePublic health ethics2020

Scraping the Web for Public Health Gains: Ethical Considerations from a 'Big Data' Research Project on HIV and Incarceration.

Stuart Rennie, Mara Buchbinder, Eric Juengst, Lauren Brinkley-Rubinstein, Colleen Blue, David L Rosen

Erratum issuedAbstract read
In one paragraph

Article in Public health ethics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 11 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Article
  4. Article
  5. Article
  6. Extracting big data from the internet to support the development of a new patient-reported outcome measure for breast implant illness: a proof of concept study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024
    Article
  7. Article
  8. Article
  9. Article
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  11. The Challenges of Big Data for Research Ethics Committees: A Qualitative Swiss Study.Journal of empirical research on human research ethics : JERHRE
    Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

6 authors.

Stuart RennieUNC Bioethics Center, Department of Social Medicine, University of North Carolina at Chapel Hill.
Mara BuchbinderUNC Bioethics Center, Department of Social Medicine, University of North Carolina at Chapel Hill.
Eric JuengstUNC Bioethics Center, Department of Social Medicine, University of North Carolina at Chapel Hill.
Lauren Brinkley-RubinsteinCenter for Health Equity, Department of Social Medicine, University of North Carolina at Chapel Hill.
Colleen BlueInstitute for Global Health and Infectious Diseases, University of North Carolina at Chapel Hill.
David L RosenInstitute for Global Health and Infectious Diseases, University of North Carolina at Chapel Hill.

Funding

Virology, Immunology, and Microbiology CoreP30AI050410 · NIAID · UNIV OF NORTH CAROLINA CHAPEL HILL · PI DAVID M. MARGOLIS · 2001 to 2026
$76.9M
Leveraging Big Data to understand and improve continuity of care among HIV-positive jail inmatesR01AI129731 · NIAID · UNIV OF NORTH CAROLINA CHAPEL HILL · PI ROSEN, DAVID L · 2017 to 2020
$2.5M
NIAID NIH HHS P30 AI050410NIAID NIH HHS R01 AI129731
6 · The paper itself

Abstract

Web scraping involves using computer programs for automated extraction and organization of data from the Web for the purpose of further data analysis and use. It is frequently used by commercial companies, but also has become a valuable tool in epidemiological research and public health planning. In this paper, we explore ethical issues in a project that "scrapes" public websites of U.S. county jails as part of an effort to develop a comprehensive database (including individual-level jail incarcerations, court records and confidential HIV records) to enhance HIV surveillance and improve continuity of care for incarcerated populations. We argue that the well-known framework of Emanuel et al. (2000) provides only partial ethical guidance for the activities we describe, which lie at a complex intersection of public health research and public health practice. We suggest some ethical considerations from the ethics of public health practice to help fill gaps in this relatively unexplored area.

Identifiers

PMID32765647
PMCPMC7392638

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.