ArticlePatient preference and adherence2020
The Experiences of Multiple Sclerosis Patients' Family Caregivers at the First Hospitalization of Their Patients: A Qualitative Study.
Article in Patient preference and adherence, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed, 13 citations in OpenAlex.
- Trial
- Article
- Aspects of dignity in family caregivers of persons suffering from multiple sclerosis.International journal of qualitative studies on health and well-being · 2025Article
- The predicting factors of chronic pain among nursing students: a national study in Iran.BMC psychology · 2024Article
- Validation of the Comprehensive ICF Core Set for Multiple Sclerosis: A Turkish clinical perspective.Turkish journal of physical medicine and rehabilitation · 2024Article
- Burden and resources in caregivers of people with multiple sclerosis: A qualitative study.PloS one · 2023Article
- Article
- Intertwined like a double helix: A meta-synthesis of the qualitative literature examining the experiences of living with someone with multiple sclerosis.Health expectations : an international journal of public participation in health care and health policy · 2022Review
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Authors and funding
5 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
BACKGROUND AND
aimBeing diagnosed with multiple sclerosis is usually accompanied by emotional trauma for patients and their families. The chronic, progressive, and unpredictable nature of the disease spells the patients' long-term need for care from their families. As soon as a diagnosis is made, family caregivers are faced with many challenges. The present study aims to identify family caregivers' experiences at the first hospitalization of their patients. MATERIALS AND
methodsThe present study is a work of qualitative research and uses the conventional content analysis approach. It lasted from July 2019 to March 2020. The subjects were selected via purposeful sampling. To collect data, the researchers conducted in-depth, semi-structured interviews with 18 family caregivers of patients with multiple sclerosis. The collected data were analyzed using MAXQDA 2007.
resultsAnalysis of the data yielded three themes: peaceful environment, need for continuing full support, and religion-based coping strategies.
conclusionThe findings of the present study can be used to develop support programs that address family caregivers' problems and needs to assist them in accepting and coping with the conditions of their patients, thereby increasing the quality of care provided to patients with multiple sclerosis.
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