Evidence map›Paper›PMID 32762414›Full record

ArticleQualitative health research2020

Empowering Patients and Health Professionals to Address Sexual Health in the Context of Anorectal Malformations and Hirschsprung's Disease.

V Petit-Steeghs, G I K Mogami-Asselin, M D Nijenkamp, M Spoel, J E W Broerse, C A C M Pittens

Abstract read
In one paragraph

Article in Qualitative health research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Evaluating the Empowerment Potential of an International Sexual Support Website for Patients with Anorectal Malformations and Hirschsprung Disease, their Parents and Healthcare Providers.European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie · 2025
    Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

V Petit-SteeghsAthena Institute, Faculty of Science, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.ORCID 0000-0001-9002-6826
G I K Mogami-AsselinAthena Institute, Faculty of Science, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.
M D NijenkampAthena Institute, Faculty of Science, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.
M SpoelErasmus University Medical Center-Sophia Children's Hospital, Rotterdam, the Netherlands.
J E W BroerseAthena Institute, Faculty of Science, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.
C A C M PittensAthena Institute, Faculty of Science, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The aim of this study is to develop a tool that is aligned with patients' and health professionals' needs to address sexual health in the context of anorectal malformations and Hirschsprung's disease. A multiphased participatory action-research was conducted. First, an inventory of needs was made through interviews (11 patients, 11 professionals), three online focus groups (4 patients, 20 professionals), and a questionnaire (38 patients). Subsequently, four cocreation sessions with in total four patients and nine professionals were organized to translate the needs into a tool (in the form of a website). The websites' functionality was assessed via a questionnaire (

Indexed as

Anorectal MalformationsHirschsprung DiseaseSexual HealthHumansPower, PsychologicalQualitative Researchempowermentexperienceshealth careholistic careillness and diseasepowerqualitativequality of lifesexual healthsexualitythe Netherlandsusers’ experiences

Identifiers

PMID32762414
PMCPMC7549282

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.